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Please Help! Need A Doctor In Minneapolis/st Paul Area - Thanks!

devo

By devo
in Doctors

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devo Explorer
devo
Posted

Hi all -

I have had digestive problems all my life and I'm finally realizing that what I am experiencing is NOT normal. I want to go to a doctor that is very familiar with celiac disease and will know what to look for. I live in the Minneapolis/St Paul, MN area. Any help would be very much appreciated, thanks!

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MNBeth Explorer
MNBeth
Posted

Oh, I wish I could help! I was diagnosed through Enterolab, not through my own doctor. Even the alt.med. dr. I see doesn't seem all that knowledgeable or up-to-date on these issues - especially non-celiac gluten intolerance, which is always the hardest to be taken seriously about. So I feel like I'm pretty much on my own. I'll be watching this thread! Hope you find someone!!

Beth

  • 2 weeks later...
ckkrepel Newbie
ckkrepel
Posted
Hi all -

I have had digestive problems all my life and I'm finally realizing that what I am experiencing is NOT normal. I want to go to a doctor that is very familiar with celiac disease and will know what to look for. I live in the Minneapolis/St Paul, MN area. Any help would be very much appreciated, thanks!

Hi! I have a little information for you. My daughter (20 y.o) just met w/ Dr. Shaukat at the Fairview Medical Center on the U of M campus, after being referred there from her primary Dr. b/c of high results on her Celiac panel of blood tests. Dr. Shaukat spent quite a bit of time w/ us discussing Celiac, the endoscopy procedure that my daughter will undergo and answering all of our questions. She took her time w/ us which was great. BUT, she explained some things in a way that is inconsistent with what I've read in books. (Altho' I am just beginning to learn about Celiac, so I'm no expert) For example: my daughter will not have to resume a gluten diet before the endo is done. (She had been gluten-free since she got the blood test results, and feels so much better. She was relieved to hear that she did not have to go back on gluten prior to the endo) But I've read that you must go back on gluten before an endo to confirm that the villi are affected. Shaukat said that you could also look for, hope I spell this right, eisoniphils, in the small intestine to check for Celiac, and not necessarily the villi. So, while I did appreciate her time with us at the office visit, I am not sure about her information....

Then I looked at the Fairview Medical Center website, and found the GI department. THere are 4 drs. there, and you can click on a bio of each one. There was one Dr., Christopher Shepela, who listed Celiac as a special interest. Shaukat has "gastroenterology" as her special interest. So Shepela might be a good person to see.

Within the last 2 months, 2 of my daughters tested high on a Celiac panel of blood tests. My younger daughter (16y.o) went to MNGI in the Pediactrics group. SHe had Dr. Arora. He is not the most "sit down and chat" type of Dr., but everything he told us was consistent with what we've read. He did her endo, just a few days ago. All went well and we are awaiting results.

So, those are the two (maybe 3) doctors I know about. Hope this helps you a bit! Take Care! CHar.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

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