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Biopsy Results Are Back

crittermom

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crittermom Enthusiast
crittermom
Posted

They were negative for celiac disease and showed no irritation. So why is my son eating next to nothing pooping 5-6 per day and not digesting a good bit of his food? Well the GI is putting him on an antispasmadic medication to help with the stomach aches. I am starting a diary today. I am leaving him on gluten for one more week and then I am going gluten free. I am going to keep track of what he eats and his bowel movements, how much he eats and his mood and if he complains of bellyaches. Ah well the search goes on. I will get to the bottom of this yet!

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gfcookie Newbie
gfcookie
Posted
They were negative for celiac disease and showed no irritation. So why is my son eating next to nothing pooping 5-6 per day and not digesting a good bit of his food? Well the GI is putting him on an antispasmadic medication to help with the stomach aches. I am starting a diary today. I am leaving him on gluten for one more week and then I am going gluten free. I am going to keep track of what he eats and his bowel movements, how much he eats and his mood and if he complains of bellyaches. Ah well the search goes on. I will get to the bottom of this yet!

there are a million other reasons why your kiddo could be having that problem. a food diary is a great idea, and, also, if celiac was the only thing investigated, maybe see a different doctor, there are quite a few other things that one should check for in a kid with those symptoms

gfpaperdoll Rookie
gfpaperdoll
Posted

well if there are other problems it is obvious that the doc did not find them & is just going to give a med.

I hope that you do not give your child the med & will start the child on a gluten-free diet right away.

I also hope that you will get the child a gene test, if not more testing, thru Enterolab.com.

see post about gene testing, about 1 thread up on this thread as of today.

crittermom Enthusiast
crittermom
Posted
  • Author

We had Michael gene tested when Katharine was diagnosed. He carries genes making him predisposed to Celiac. That is why we were following the celiac route, apparently we were on the wrong route though. Now we have to look at other reasons. We are however going to introduce a gluten free diet to see if that helps.

gfcookie Newbie
gfcookie
Posted
We had Michael gene tested when Katharine was diagnosed. He carries genes making him predisposed to Celiac. That is why we were following the celiac route, apparently we were on the wrong route though. Now we have to look at other reasons. We are however going to introduce a gluten free diet to see if that helps.

that sounds wise, however, i wouldn't stop at that untill you are sure it is nothing else, the sooner you get him feeling better, the better. (sorry that was redundant =p)

hayley3 Contributor
hayley3
Posted

Did he say IBS?

That's what they say I have.

I swear, it amazes me when they say you don't have something because of testing, when I don't think they really know the whole spectrum of the disease.

For instance, I was tested for the HLA-B27 gene because it is suppose to indicate spondylitis which is associated with Inflammatory Bowel Disease and Reactive arthritis. They tested me about a year ago, and it was negative. The doctor was actually derogatory toward me after that test.

Now a year later, they have found more gene markers for that disease. Isn't that amazing.

So that's something to keep in mind. They might assume to know everything, but they really don't. Some doctors are just textbook-programmed robots.

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