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Biopsy Results Are Back


crittermom

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crittermom Enthusiast

They were negative for celiac disease and showed no irritation. So why is my son eating next to nothing pooping 5-6 per day and not digesting a good bit of his food? Well the GI is putting him on an antispasmadic medication to help with the stomach aches. I am starting a diary today. I am leaving him on gluten for one more week and then I am going gluten free. I am going to keep track of what he eats and his bowel movements, how much he eats and his mood and if he complains of bellyaches. Ah well the search goes on. I will get to the bottom of this yet!


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gfcookie Newbie
They were negative for celiac disease and showed no irritation. So why is my son eating next to nothing pooping 5-6 per day and not digesting a good bit of his food? Well the GI is putting him on an antispasmadic medication to help with the stomach aches. I am starting a diary today. I am leaving him on gluten for one more week and then I am going gluten free. I am going to keep track of what he eats and his bowel movements, how much he eats and his mood and if he complains of bellyaches. Ah well the search goes on. I will get to the bottom of this yet!

there are a million other reasons why your kiddo could be having that problem. a food diary is a great idea, and, also, if celiac was the only thing investigated, maybe see a different doctor, there are quite a few other things that one should check for in a kid with those symptoms

gfpaperdoll Rookie

well if there are other problems it is obvious that the doc did not find them & is just going to give a med.

I hope that you do not give your child the med & will start the child on a gluten-free diet right away.

I also hope that you will get the child a gene test, if not more testing, thru Enterolab.com.

see post about gene testing, about 1 thread up on this thread as of today.

crittermom Enthusiast

We had Michael gene tested when Katharine was diagnosed. He carries genes making him predisposed to Celiac. That is why we were following the celiac route, apparently we were on the wrong route though. Now we have to look at other reasons. We are however going to introduce a gluten free diet to see if that helps.

gfcookie Newbie
We had Michael gene tested when Katharine was diagnosed. He carries genes making him predisposed to Celiac. That is why we were following the celiac route, apparently we were on the wrong route though. Now we have to look at other reasons. We are however going to introduce a gluten free diet to see if that helps.

that sounds wise, however, i wouldn't stop at that untill you are sure it is nothing else, the sooner you get him feeling better, the better. (sorry that was redundant =p)

hayley3 Contributor

Did he say IBS?

That's what they say I have.

I swear, it amazes me when they say you don't have something because of testing, when I don't think they really know the whole spectrum of the disease.

For instance, I was tested for the HLA-B27 gene because it is suppose to indicate spondylitis which is associated with Inflammatory Bowel Disease and Reactive arthritis. They tested me about a year ago, and it was negative. The doctor was actually derogatory toward me after that test.

Now a year later, they have found more gene markers for that disease. Isn't that amazing.

So that's something to keep in mind. They might assume to know everything, but they really don't. Some doctors are just textbook-programmed robots.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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