Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This


Kal-rose0486

Recommended Posts

Kal-rose0486 Newbie

My soon to be 2 year old daughter was just diagnosed with Celiac's in the last month. She has always been on the low end for weight and it was the last test they decided to do before they decided she was just built small.

No one in either side has been diagnosed or had it, but I am suspicious of it coming from my side of the family. My mom was just diagnosed last year with rheumatoid arthritis, and one of my brothers has reynod syndrome, alers danlose, and terrets (I only know for sure that reynod doubles your chances). So, how much greater are their odds just from being related to a celiac and having an autoimmune disease?

Also-I am due to have our second child within weeks. How soon should we have him tested for Celiac? I know it takes the body some time to react to the intolerance of it, and that is the only way for the tests to show it (from what the nutritionist explained) but he already has other medical issues and I want to get it taken care of ASAP.

Thanks for any help before hand. I know I will be coming here often for information and advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



fedora Enthusiast

hi,

being related to a celiac ups your odds of having celiac also. The closer the relative the more chance. I can't remember the odds for sure, but I think it is 1 in 22 if you have a first degree relative with celiac. Celiac and other auto immune diseases can overlap.

When you said he already has other medical issues and I want to get it taken care of ASAP.

who are you talking about? Your unborn child? What other medical issues?

The blood tests have many more false negatives for childen under 5. It does take time for the antibodies to form and build up. You can always do a trial gluten free diet if you are nursing and he has problems. I had to give up tomatoes, pinto beans, peanuts, and dairy with one of my three children, but he eats them all now with no problems(except dairy) You can delay giving him any gluten for a long time and then take him off it if he has any problems later.

Or you could get a DNA test done through enterolab. It is just a mouth swab. Then you would know if he has a celiac gene or not. It is around $150 I think.

Good luck. Let us know how it turns out.

a ditmars Newbie

There is genetic testing available through www.EnteroLab.com. If your daughter aready tested positive that would mean that either you or the childs father would also have the gene. If it were me, and I was expecting a baby I would get tested as soon as possible and also have the baby's father tested also. I my own case I wished I had known when I was nursing my son. I was passing gluten to him then and most likely when I was pregnant too. There is a huge link between cases of children and learning disablities, Autism, loads of other disorders that are connected with Celiac.

The test is a cheek swabbing so it is simple to do on a small child also. Some say the testing (cost $150) is pricey but it sure beats the years of illness, testing and doctors visits my son had to endure before we finally found genetic testing. It turns out that both his Dad and I are gene carriers. Nearly every member of our extended family has now been diagnosed.

Good Luck,

Allison

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.