Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting...


kkv

Recommended Posts

kkv Newbie

I was just looking through this forum because I was tested on Friday for Celiac Disease and I am not sure that i have it, but it is all that I can think about. I have been having trouble with digestion for about 7 years now, that I can remember. I am 27 and this started getting bad when I was a junior in college. Lately my stomach troubles have been getting worse with pain after I eat and constipation and alternating diarrhea. I went to an internist at the urging of my family and he did a bunch of blood work and found nothing. It wasn't until my mother went out to eat with friends and a person they were with had Celiac. She called me to tell me about it and when I got online I felt like this was what has been wrong with me. I have had migranes diagnosed before and spent several years in college at the doctor with "tension headaches" and was tested for Mono and meningitis several times all negative. I have also had trouble with canker sores and cavities, but other than that and IBS like symptoms, I am healthy. I maintain a healthy weight, have run half marathons, work out and lead a pretty normal life, other than having to run to the bathroom quickly a lot.

I am dying to get the results back so that I can either know for sure this is the cause of what is wrong with me or try to figure it out in some other way. I don't really know what to think. My family doesn't want me to jump to conclusions on this, but it is all I can think about!

Not sure that I even need responses, I just wanted to talk to people who may know what I am going through...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scotty Explorer

start eating fruits veggies and meats. find your foods. you will get better. you come to the right place. the best test results is how the diet change makes you feel. cross your fingers on that soy and the corn and the...welcome

flourgirl Apprentice

Hi and welcome. What test did you have? If only a blood test...keep in mind that a negative result does not necessarily mean that you don't have it. You will probably need to get a biopsy of your small intestine for villi damage for a conclusive diagnosis. You may want to stay on your regular diet until you know for sure, in order to get accurate test results. It's a pain, literally, to stay sick until you get the green light to start eating to get well. In the meantime, read all you can, ask any questions you like. There are many caring and well informed people here who are happy to help. Good luck! I wish you quick results.

kkv Newbie

I had the specific antibody blood tests for Celiac - I can't remember the names, but there were 2 - do the blood tests come back negative and you can still be positive with the biopsy?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...