Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was This Due To Gluten?


FlyGirl

Recommended Posts

FlyGirl Rookie

I travelled for the first time since electing to become gluten-free after having a very positive reaction to gluten (pure wheat or just gluten flour on a rice cake) while doing allergy testing. My single interaction with GI Dr provided a negative blood test. Prior elimination testing for allergens identified strong reactions from dairy and soy so I've been wondering about whether the blood test was in error.

However, fundamentally I'm a believer in science so I'm not sure whether I'm just imagining things or if there is an actual problem. However, except for 3 food challenges, I've been (as far as I know) gluten free since late January. This is a highly inconvenient and annoying dietary change--annoying for me and my long-suffering spouse.

However, I was travelling last week and ended up in the south having a really hard time finding anything other than french fries or a dinner salad that wasn't breaded. At one point I caved and had fried clams. OK, so it wasn't a good choice regardless of wheat allergies, but I'm still trying to figure out what I can and can't eat. 3 months ago I ate wheat whenever I wanted. How bad could it be? Possibly very bad, it seems!

For the next two days my belly hurt every time I ate or drank anything. Pain came in cycles that would last 30 - 90 seconds and then start to fade. After a few minutes it would start again, slowly cycling down to nothing. Unpleasant but not life threatening. After making a meal of fries more than once in the last week, it was OK to not eat much.

However, by the end of the second day it was worse, not better. I also started having diarrhea. Day 3 I was travelling home all day and my belly was bad enough that I just stuck to apple juice and gatorade. Immodium became necessary shortly after rising (and I never leave home without it). By late afternoon for about 4 hours my belly hurt constantly, badly enough that I couldn't focus on anything else. Dragging through airports was pushing me to my limits. The spouse was talking about driving me straight to the emergency room--he's a nurse and thought I had a ruptured ovarian cyst or something. However, as I was lying on the floor in baggage claim (at that point I no longer had any pride), there was some small improvement which continued as we drove home. By the time we made the 2+ hour trek to our town it was clearly not an emergency room event. I even had some rice crackers before I went to bed and there was really no discomfort.

Today, when I woke up everything was fine. After having stuck to rice, rice noodles and egg, not a twinge all day.

Despite my love of the scientific method I don't really want to repeat this experience, although I do really like fried clams. It seems pretty important to know, though, if it was the breading on the clams or something completely unrelated--perhaps a bad salad experience.

For you guys who have screwed up before, does this sound like 'food poisoning' or a gluten issue?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MDRB Explorer

Hi,

Its always tough with these things because the symptoms of a tummy bug can be eerily close to the symptoms of being glutened. One thing you could do is contact the place that you ate and talk to the chef about the ingredients. I find that its always a good idea to ask the staff about gluten free dishes whenever I eat out, and if they don't have anything I order a salad, no bread, no olives (they are often preserved in vinegar which contains gluten) with just olive oil and lemon juice as a dressing. This usually avoids any problems. Also, depending on where you get fries from, they sometimes contain gluten (I know this is the case with Mcdonalds fries)

I have started carrying around gluten-free snack bars just in case I can't find anything gluten-free to eat. It certainly isn't the mot convenient lifestyle, but it does make us feel better.

FlyGirl Rookie

D'Oh! I just queried a few fried clam strip recipes and found that they usually also contain dairy. Perhaps it was a double-whammy.

I left on my trip with 8 gluten free bars (Larabars). They were gone faster than I expected. For some reason I couldn't find more at the grocery store there.

Clearly I'm still in training.

Phyllis28 Apprentice

FlyGirl,

I suggest that you read the posts in the Travel Catagory of this forum before your next trip. There are lots of great tips for eating while traveling.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,082
    • Most Online (within 30 mins)
      7,748

    MelanieR
    Newest Member
    MelanieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.