Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Here's A New One

GlutenWrangler

Recommended Posts

GlutenWrangler Contributor
GlutenWrangler
Posted

Hey Everyone,

I haven't posted in a little while, so I figured it's about time that I check in. There hasn't been any change whatsoever in my condition, which is partially why I haven't posted recently. So I'm still on the IV Nutrition, and I'm still not eating anything at all. But on a positive note, I was able to get on disability, which is such a huge help.

But anyway, my doctor decided to try out a new prescription about a month ago to see if it would help settle my stomach and give me an appetite. It's called Marinol, which I'm sure some of you have heard of. It is pure synthetic THC, which is the main component in Marijuana that causes the psychoactive effects. So basically it's a Marijuana pill. It's supposed great for nausea, gi upset, and appetite stimulation. So far, I'm really impressed with its effectiveness. It works wonders for nausea, and can calm my stomach down within minutes. It also helps to stimulate my appetite, although not enough to allow me to eat. It does get you really "high" though, and can cause some drowsiness too. But all around, it really helps.

Is there anyone else here who has tried Marinol? If so, how helpful was it for you? Thanks in advance!

-Brian

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I don't have any experience with this but I have heard of it. I am surprised it makes you feel 'high' though, I thought the whole reason they made a pill was so people wouldn't. I am glad it is helping you a bit. I hope you continue to improve and that you are soon able to injest food.

That is good news about the disability also, that must be a real relief.

cruelshoes Enthusiast
cruelshoes
Posted

I took that medication as a teenager during cancer treatment. It was not under that brand name, it was just marketed as THC. It did stimulate my appetite and help with the nausea, but I did not care for the side effects. I had hallucinations with it. I remember distinctly sitting in my astronomy/geology class after taking a dose and watching my teacher's face melt. It made me very paranoid too. I don't know if everyone has the same experience. The few times I tried getting my THC the old fashioned way as a teenager (don't you dare tell my mother!) I had the same effects. Maybe it is just me. I ended up giving the unused pills back to the pharmacy.

Glad it is working for you.

home-based-mom Contributor
home-based-mom
Posted

Glad to see that you are well enough to post. That is GREAT news about the disability!

As far as the THC goes, I believe the reason it was put into a pill form was not to reduce or eliminate the side effects such as getting high, but to eliminate the impurities and inconsistencies in the cultivated product, and not subject an already very sick person to lung damage from smoking. (It does not matter the source of the smoke - smoke in lungs causes damage.) The active ingredient in THC still does what it does.

As a "child of the '60's" I think I am qualified to tell you that the side effects mentioned by Brian and Colleen are the reason most (I realize not all) people who ingest THC "the old fashioned way" indulge in that activity. They are seeking those very same side effects. ;)

GlutenWrangler Contributor
GlutenWrangler
Posted
  • Author

Yeah it's not for everyone. I smoked as a teenager, so I have no problem with the side effects. I started up again to help settle my stomach last fall. But it started to affect my lungs, and my doctor felt that it was worth switching me to the pill form. Home_Based_Mom is right though, the point of the pill is to remove all of the impurities, and to relieve the patient's lungs.

But it helps a lot, not only for my stomach, but also for my pain as well. I would think that a lot of Celiacs could benefit from it, in terms of appetite stimulation, and calming down the stomach after being glutened. But at the same time, it's not the easiest drug to get prescribed.

-Brian

sickchick Community Regular
sickchick
Posted

Hey!:)

Congratlations on your disability Sweetie! I am so happy you found something to help with your appetite

lovelove

Collette

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748
    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.