Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am So Upset: I Just Found Out I Have Gluten Intolerence.


Violinist

Recommended Posts

Violinist Rookie

I just found out I have gluten intolerence and I don't know what to do. I am so confused and upset.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aleshia Contributor
I just found out I have gluten intolerence and I don't know what to do. I am so confused and upset.

awww don't be sad it is a lot easier than it seems really.

how did you get diagnosed? what are your symptoms? I'm sure once you go on the Gluten free diet you will feel so much better that it won't seem so difficult. do you have Wholefoods or TraderJoes or CentralMarket in your area? even Fredmeyer has a lot of glutenfree stuff. I think I have heard that QFC does as well

I would eat basic foods like rice, potatoes, vegetables, meat, cheese etc. and then try to find gluten-free substitutes for the other things you miss like pasta. the Brown rice pasta I tried was pretty good and so was the quinoa pasta.

do you know if you have celiac disease? or is it some other type of gluten intolerance?

Violinist Rookie

It's just intolerence, and I have no symtoms, however, my brother has celiac so my mom said we should all get tested. I got diagnosed from enterolab. I know that it will help me in the long run, but it's so hard right now.

Aleshia Contributor
It's just intolerence, and I have no symtoms, however, my brother has celiac so my mom said we should all get tested. I got diagnosed from enterolab. I know that it will help me in the long run, but it's so hard right now.

that must be hard to not have the symptoms that kindof help you know when there is a problem... I wonder if there is a specialist who you could talk to to find out how seriously you need to follow the diet... like if you have the genes that make you succeptable to celiac disease but don't actually have the disease yet I believe that you shouldn't have to follow the diet. you just would need to get tested every year or so to be sure you haven't developed celiac disease yet. maybe someone with more experience could answer questions better.

if you want you could repost your topic in the "coping with" section so you have a broader "audience" looking at it

  • 4 weeks later...
Celiacgirl4GOD Newbie

I know how you feel. I found out that I have gluten intolerance last year and i found out that it wasn't a picnic! At first, food choices may seem few, but keep getting on this board and it may be an encouragement to you. God has a plan for everything so...let's see what He has in store for you!

home-based-mom Contributor

Good for your mom! :D

If your brother has celiac, it must run in your family. Look at your aunts, uncles, cousins, grandparents, etc. Are they healthy? My guess is many of them have a lot of health problems. It seems like gluten can cause almost any symptom, so even if it seems totally illogical, there is a good chance your relatives' problems are caused by gluten.

Trust me - you don't want to go there and you don't want to be like that - whatever that is! :P You want to be healthy until you breathe your last breath, and going gluten free now gives you a *much* better chance of doing that.

Picture your least healthy relative and tell yourself "I'm NOT going to end up that way!"

It may not keep you perfect, but it will definitely help you to turn down what you shouldn't eat.

Most natural foods are gluten free. You will learn how to create substitutes for the processed stuff you can't live without. It *is* hard at first but it does get easier.

It sounds like you are going to have help and support at home. You may not realize it yet but that is such a blessing. Many others have to cope amidst literal sabotage.

Hug your mom! :D

frec Contributor

I am so sorry! I was so upset when I found out that I went home and went to bed in the middle of the day. I am glad you don't have symptoms; that probably means you are catching it early before you develop problems like osteoporosis or additional food allergies. You may be surprised though. Some health issues that I didn't think were caused by gluten disappeared in the year after I went on the diet. My acne cleared up, I stopped having mouth sores, I had fewer colds, I stopped being anemic--it was quite wonderful. I'd had no idea those problems were caused by the celiac disease.

Here is my best trick for coping with missing your favorite red licorice or cinnamon rolls or whatever. Figure out why you ate it--what comfort it gave you--and find a replacement that does the same thing. I miss cheese terribly (I'm dairy free) and found that avocado gave me the same fattening treat effect. Red licorice was my favorite working late treat; now I bring gluten free chocolate to work.

At least you can commiserate with your brother, and he can help you shop. My brother still thinks I'm a hypochondriac who embarrasses him at restaurants! ( :

Good luck--


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,261
    • Most Online (within 30 mins)
      7,748

    Amy A
    Newest Member
    Amy A
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
×
×
  • Create New...