Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bakersfield Support Group


stargirl

Recommended Posts

stargirl Apprentice

Hi everyone, I just wanted to let you know that there is a support group starting up in Bakersfield and right now we have about 18 people interested in joining. I know three or four of us here are from Bakersfield were interested in starting up a group. If you would like to join this fledgling group please email bakersfieldceliacs@sbcglobal.net. We will put you on the mailing list for the group and hopefully have another meeting soon.

  • 4 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debm5 Newbie

Hello, It's been a long time since I've posted. Previously momof3. I had to change my user name.

Im glad to to back!!!! Stargirl, have you been to Lassens located on California ave, Mervyns shopping center? They are having a seminar re: celiac, Feb 26, 11:00am.

They have a sign up sheet at the front door. They will call you you to confirm.

I tried to e-mail you at the sight to posted. It would not go through for me.

debm5

(momof3)

celiac3270 Collaborator

Momof3,

If you e-mail Scott, he can change your username for you--then you can keep your personal statistics, signatures, PMs, etc. :)

stargirl Apprentice

Wonderful to hear from you again! I wondered where everyone had gone. Lassens is helping us to set up the support group. We had a meeting there a month ago where my aunt, mom and I all spoke. This time I think it is just my aunt, all in the family. I would love to see you there, I more than likely will be. I'll see what I can do about the email, I don't know why it wouldn't go through.

debm5 Newbie

Hello group, I'm glad we are getting support. I really hope that I can attend Sat. My mom is at UCLA as of this past Saturday. They removed her kidney(cancer). So if i'm not there, keep me up to date!

I notified the board re: my user name. They said theres not much they can do about it???? I checked my firewall and cookies, and to my knowledge it's the same.

I did change from R-Runner to SBC dsl. So for now I'll be debm5 I guess.

Glad to be back!! deb

  • 1 month later...
debm5 Newbie

Hi stargirl,

Are the support groups still meeting at Lassens? I hope so!! It's been a stressful time for me. My mom past away march 6th. I feel I am not being as careful with my diet. A support group would be nice.

Debbie

  • 3 weeks later...
debm5 Newbie

Hello Bakersfield group,

There is a conference coming up in Los Angeles.

Annual Educational Conference & Food Faire( for the whole family!)

Sat, May 21,05

8:30am-4:00pm

@Good Samaritan Hospital(Moseley-Salvatori Conf Cntr

637 South Lucas Ave

Los Angeles, Ca 90017


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debm5 Newbie

stargirl,

I'm just wanting to find out if the group is still going on at Lassens.

Debbie

stargirl Apprentice

Sorry it took so long for me to get back to you Deb. The group is still alive but as of right now doesn't have a meeting planned. I'm sorry to hear about your mom. I'll keep in my prayers.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    2. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      GI DX celiac despite neg serology and no biopsy

    3. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

    5. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    kygirlsusan
    Newest Member
    kygirlsusan
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.