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Dtr's Numbers

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mouth Enthusiast
mouth
Posted

Can WE start the happy dance yet?? Got newest tTg numbers.. She is down to 42!!! In Jan She had gone up to 72 from 68..

Does anybody know how long it takes for healing?? We only got Dx'd last year and she was well over 100!!!!

Thanks

Have a wonderful gluten-free Summer All !!!

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khockman Newbie
khockman
Posted
Can WE start the happy dance yet?? Got newest tTg numbers.. She is down to 42!!! In Jan She had gone up to 72 from 68..

Does anybody know how long it takes for healing?? We only got Dx'd last year and she was well over 100!!!!

Thanks

Have a wonderful gluten-free Summer All !!!

Congratulations. I know you must feel awesome with that great news. My toddler was dx'd in early march. Her test just read greater than 100 then, and when we retested last week, it was still greater than 100. So I am hoping to have some good news in a few more months. I was wondering the same thing about how long it takes for healing.

mouth Enthusiast
mouth
Posted
  • Author
Congratulations. I know you must feel awesome with that great news. My toddler was dx'd in early march. Her test just read greater than 100 then, and when we retested last week, it was still greater than 100. So I am hoping to have some good news in a few more months. I was wondering the same thing about how long it takes for healing.

Ok, back to you on the healing time.. I know it does take time I just dont know how long. And that is the way my daughters blood work was last year when she was dx'd.. just said over a 100.. but it is a year and a half now.. that is why i am wondering..

good luck and feeel good

lynn

khockman Newbie
khockman
Posted
Ok, back to you on the healing time.. I know it does take time I just dont know how long. And that is the way my daughters blood work was last year when she was dx'd.. just said over a 100.. but it is a year and a half now.. that is why i am wondering..

good luck and feeel good

lynn

So what is your daughter's tTG level now?

khockman Newbie
khockman
Posted
Can WE start the happy dance yet?? Got newest tTg numbers.. She is down to 42!!! In Jan She had gone up to 72 from 68..

Does anybody know how long it takes for healing?? We only got Dx'd last year and she was well over 100!!!!

Thanks

Have a wonderful gluten-free Summer All !!!

Okay, mouth. Sorry. I am an idiot. You are the one who started this thread and you've already told us your daughter's numbers! Sorry! This gives me comfort.

khockman Newbie
khockman
Posted
Congratulations. I know you must feel awesome with that great news. My toddler was dx'd in early march. Her test just read greater than 100 then, and when we retested last week, it was still greater than 100. So I am hoping to have some good news in a few more months. I was wondering the same thing about how long it takes for healing.

So did your daugther get checked at 3 months after diagnosis? Cause that's how long it's been for us and it seems a little too early for numbers to drop for me...Do you mind telling me what her level was at 6 months after diagnosis?

mouth Enthusiast
mouth
Posted
  • Author
Congratulations. I know you must feel awesome with that great news. My toddler was dx'd in early march. Her test just read greater than 100 then, and when we retested last week, it was still greater than 100. So I am hoping to have some good news in a few more months. I was wondering the same thing about how long it takes for healing.

I have no idea how long the healing takes, but have u seen any difference since you have gone gluten-free?? That is important in istself.. It does take a while for the numbers to start to go down.. I wouldn't worry unless its a while and they dont go down at all.. then more testing maybe required. That is what happened with my friend. Then they found out her daughter could not even break down processed gluten-free foods. Her GI sent her to another top notch specialist-- another special diet was needed for like years and now she is on the regular gluten-free diet and her numbers have gone down..

So have patience.. As long as you trust your GI, and trust your instincts, and read your labels, you should be ok.. Be glad that your child was Dx'd as an infant and not a 13 year old.. It is much harder.. Now your child will no no other way... That is sort of good..

Any way, God Bless and Stay well

EAT WELL TO BE WELL

LYNN

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mouth Enthusiast
mouth
Posted
  • Author
So what is your daughter's tTG level now?

42 thank u

mouth Enthusiast
mouth
Posted
  • Author
So did your daugther get checked at 3 months after diagnosis? Cause that's how long it's been for us and it seems a little too early for numbers to drop for me...Do you mind telling me what her level was at 6 months after diagnosis?

I guess that it depends on the Dr. My daughter it was we think 3 months also and there was no difference at 6 months, she was down to 68, then 6 months later she was up to 72. 3 months after that which is now she is at 42..

But I don't know if this has anything to do with it at all, but when she finally got a gray area biopsy and the pathologist said "base it on the blood wk" she was well over 100 and had gone thru a tremendous growth spurt.

She went from a 7 slim jeans in June 2006 to a size 10 regular by December 2006. Then In Jan 2007 she had t go into a size 12.. The 12's she has been wearing since- but mind you she had no choice the 10's were too small and the 12's too long and she needed a belt.. 12 slim didnt quite make it.. So now (or till now) she has grown enough that they are starting to get short, and she filled them out and is out growing them again. And Is in the Midst of antoher growth spurt. Also in her first growth spurt her bone age jumped 2 years in 6 months.. That is how small she was.. Right now I only have an inch on her (im 4-9) but she weighs in at 5 lbs less than i did when i graduated HS..

Any way enuf of the babbling here

EAT WELL TO STAY WELL

LYNN

mouth Enthusiast
mouth
Posted
  • Author
Okay, mouth. Sorry. I am an idiot. You are the one who started this thread and you've already told us your daughter's numbers! Sorry! This gives me comfort.

DONT WORRY NO WORRIES HERE THAT IS WHAT THIS IS FOR TO HELP EACH OTHER..

FEEL FREE ANYTIME

EAT WELL TO STAY WELL

LYNN

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