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Nervous- Upcoming Tests


jasonD2

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jasonD2 Experienced

I decided to finally have the genetic test (HLA-DQ panel) and the blood Ab test after i do a 2-3 week gluten challenge. I'm really nervous about what they might find. only potential diagnostic criteria i have now are the results of the enterolab stool anti-gliaden test - which showed a slightly elevated result (21 on a scale of 1-10 being normal)

I saw a celiac specialist last week and she seems to think that stool antibody tests are only useful in infants and would rather make a diagnosis based on the results of the blood test. my naturopathic doctor doesnt think i have celiacs because i am in otherwise good health and never presented with the classic symptoms.

I just dont know what to think or who to believe. im also nervous about doing the gluten challenge diet- im not sure how i will react to it since it hasnt been in my diet for 8 months.


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munkee41182 Explorer

I never presented the classic symptoms either. I had mild constipation and some heartburn, nothing that made me nervous or see the doctor about. My primary knew of my family history of celiac, I told her of some of my symptons (i think she was prying for me to have symptoms) then had me go to the lab to draw some blood. low and behold...I have celiac.

How did you feel before when you ate gluten? I know I went off the diet after being on it for a year very strict and I felt fine (I know I should never have gone off of it...but I am noW gluten-free again)....although the hard stools did come back. Just be aware of how your body reacts being off the gluten-free diet. Good Luck

jasonD2 Experienced

Did u have any other symptoms? Which tests did you have to confirm Celiac?

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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