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Nervous- Upcoming Tests


jasonD2

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jasonD2 Experienced

I decided to finally have the genetic test (HLA-DQ panel) and the blood Ab test after i do a 2-3 week gluten challenge. I'm really nervous about what they might find. only potential diagnostic criteria i have now are the results of the enterolab stool anti-gliaden test - which showed a slightly elevated result (21 on a scale of 1-10 being normal)

I saw a celiac specialist last week and she seems to think that stool antibody tests are only useful in infants and would rather make a diagnosis based on the results of the blood test. my naturopathic doctor doesnt think i have celiacs because i am in otherwise good health and never presented with the classic symptoms.

I just dont know what to think or who to believe. im also nervous about doing the gluten challenge diet- im not sure how i will react to it since it hasnt been in my diet for 8 months.


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munkee41182 Explorer

I never presented the classic symptoms either. I had mild constipation and some heartburn, nothing that made me nervous or see the doctor about. My primary knew of my family history of celiac, I told her of some of my symptons (i think she was prying for me to have symptoms) then had me go to the lab to draw some blood. low and behold...I have celiac.

How did you feel before when you ate gluten? I know I went off the diet after being on it for a year very strict and I felt fine (I know I should never have gone off of it...but I am noW gluten-free again)....although the hard stools did come back. Just be aware of how your body reacts being off the gluten-free diet. Good Luck

jasonD2 Experienced

Did u have any other symptoms? Which tests did you have to confirm Celiac?

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  • Posts

    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
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