Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nervous- Upcoming Tests


jasonD2

Recommended Posts

jasonD2 Experienced

I decided to finally have the genetic test (HLA-DQ panel) and the blood Ab test after i do a 2-3 week gluten challenge. I'm really nervous about what they might find. only potential diagnostic criteria i have now are the results of the enterolab stool anti-gliaden test - which showed a slightly elevated result (21 on a scale of 1-10 being normal)

I saw a celiac specialist last week and she seems to think that stool antibody tests are only useful in infants and would rather make a diagnosis based on the results of the blood test. my naturopathic doctor doesnt think i have celiacs because i am in otherwise good health and never presented with the classic symptoms.

I just dont know what to think or who to believe. im also nervous about doing the gluten challenge diet- im not sure how i will react to it since it hasnt been in my diet for 8 months.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munkee41182 Explorer

I never presented the classic symptoms either. I had mild constipation and some heartburn, nothing that made me nervous or see the doctor about. My primary knew of my family history of celiac, I told her of some of my symptons (i think she was prying for me to have symptoms) then had me go to the lab to draw some blood. low and behold...I have celiac.

How did you feel before when you ate gluten? I know I went off the diet after being on it for a year very strict and I felt fine (I know I should never have gone off of it...but I am noW gluten-free again)....although the hard stools did come back. Just be aware of how your body reacts being off the gluten-free diet. Good Luck

jasonD2 Experienced

Did u have any other symptoms? Which tests did you have to confirm Celiac?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

    2. - Scott Adams replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Seeking advice on potential gluten challenge

    3. - Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      6

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Greymo replied to Mary D63's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Violent reaction to gluten after going gluten-free?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,160
    • Most Online (within 30 mins)
      7,748

    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.