Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Disease


tammy

Recommended Posts

tammy Community Regular

:blink::unsure::blink:

Are there any other females with a very similar diagnosis as mine?

I take two thyroid medications, adrenal support, natural progesterone and of course, a gluten-sensitive and dairy sensitive diet.

I am shocked that I even get through a single day. But to meet me you probably would never know that I live with this small hellish diagnosis.

It's the management of it that sucks and not letting the negative side of all of our personalities get the best of me.

To attempt to end this post on a more happy note, here are a few tips for you!

Do what you love and eat right! Support your body with exercise and supplements. Acidophilus, pure coconut oil, colostrum, E.F.A's, and pure aloe juice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Tammy, I also have hypothyroidism and on replacement therapy since 1999. Then diagnosed with Celiac in September 2003. ;)

I too have pity parties and wonder why me? But then I think it could be a lot worse, at least I can get out of bed, and I can walk, talk, hear and see! I have not been diagnosed with a terminal disease, so I am VERY thankful for that! :D

Stay well and take care.... :)

seeking-wholeness Explorer

Tammy,

I, too, follow a gluten-free/CF diet. I am taking natural thyroid supplementation recommended by my naturopath, and I would be taking adrenal support as well except I haven't yet gotten around to verifying its gluten-free status. I have found, though, that the gluten-free diet by itself has worked wonders for my adrenal exhaustion. I am beginning to suspect that I have developed a problem with low progesterone levels SINCE going wheat-free/gluten-free (sort of like getting more sensitive to gluten), but I have decided not to worry about that at this moment. If it is gluten-related, I expect it will solve itself with further time on the gluten-free diet.

My grieving period when I realized that celiac disease was my basic problem was remarkably brief, and I am forever grateful that the "cure" is entirely within my grasp! I have improved SO much on the gluten-free diet that I would never give it up, and I find myself becoming able to cope with its convoluted logistics much better as time goes on. Some of that is familiarity, but at least as much stems from my newfound sense of mental/emotional stability and PEACE with my place in the world, brought about by the gluten-free diet. I wish the same benefit to you and everyone else who must deal with a lifetime of celiac disease. Good luck!

  • 2 years later...
mortamer Newbie

:blink::unsure::blink:

Are there any other females with a very similar diagnosis as mine?

I take two thyroid medications, adrenal support, natural progesterone and of course, a gluten-sensitive and dairy sensitive diet.

I am shocked that I even get through a single day. But to meet me you probably would never know that I live with this small hellish diagnosis.

It's the management of it that sucks and not letting the negative side of all of our personalities get the best of me.

To attempt to end this post on a more happy note, here are a few tips for you!

Do what you love and eat right! Support your body with exercise and supplements. Acidophilus, pure coconut oil, colostrum, E.F.A's, and pure aloe juice!

I am a new Celiac (March) I have a Hyperthyroid Wich would be ok if I wasn't Gluten free. I am having a heck of a time trying to maintain my weight.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.