Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reactor And Nonreactor


aldociao

Recommended Posts

aldociao Rookie

A question keeps coming to mind whenever I read about the different reactions we are having to the same foods. Like today, when one post was recommending McGann's Irish Oatmeal because the poster never has a reaction to it and therefore considers it safe, and another post quickly offered the observation that she had a severe and unmistakable reaction soon after eating the oatmeal and so for her it was off limits.

The usual explanation--correct me if I'm wrong--is that we are different. Some can tolerate what others cannot. I'm not sure what this means, but I'm guessing that it means our digestive systems are different, that is, more or less damaged by the gluten, and possibly by food allergies, and so we can have a more or less (or no) reaction to the questionable food, or ingredient. If the condition is a food allergy I can understand one not bothering too much about the possible damage that is being done because our antibodies are doing supposedly their job. And apart from an elavated rise in antibodies there is no damage being done to the body, outside of, I would guess, a certain amount of wear and tear. (Is this so?)

My real concern is about those of us, probably most of us, who have celiac disease. Being an autoimmune disorder, isn't it slowly, and maybe not so slowly for some, wrecking havoc with our insides, whether we know it or not? And no matter how little gluten gets into our bodies? Or so I have been led to believe by reading the posts on this Board. If this is so, how can we be sure when ingesting a food that most would consider risky, like oatmeal--at least to the extent that nothing conclusive has been found either way--that we are not damaging our bodies? Especially if you're mostly a non-reactor, with only minor reactions. And isn't it possible for those who normally are very sensitive to gluten, or to certain forms of it, like in wheat, to be less sensitive to the form of gluten in other grains so that they are not visibly reacting but may be doing damage nonetheless. Is it possible to get a definitive answer to this? Or is it just one more troubling uncertainty that we will have to live with, along with everything else? --Aldo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

Aldo,

I don't know the answers to the questions you have posed (although I will say that your understanding of allergies concurs with mine), but I did have a thought to share. I wonder if celiacs who react to oats have the less common gene for celiac disease (or even a third, as a recent post here indicated DOES exist!). It would be really interesting to see this factor addressed in a future study. In the meantime, I am choosing to avoid oats for now. Back in the days when I was wheat-free but not gluten-free, I had huge reactions to barley but none (that were obvious, at least) to oats. Possibly, after a few years on the gluten-free diet and after a stool test from Enterolab indicates that I am doing acceptably well, I may decide to test oats and see what happens to my antibody levels. I hope I can eventually have them because I really enjoy them, but I am certainly doing fine without them.

I hope you're doing well!

clare Newbie

My body seems to have a love/hate relationship with oatmeal. Granted, the only kind I've been able to find here consistently (Korea) is the giant Costco pack of instant flavoured oatmeal. I gave it up for a while but after two months straight of brown rice flakes for breakfast, decided to give it another try since they had a different variety of flavours when I was at Costco last week. It's my suspicion that the cinnamon&spice variety was the culprit, since I haven't had any reaction yet. If it starts causing trouble again, I guess I'll have to resign myself to the brown rice flakes (a.k.a cardboard bits) till I move back to Canada.... :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.