Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Tests


TammyK

Recommended Posts

TammyK Apprentice

What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



par18 Apprentice
What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.

I could not agree more. Why get a full panel with negative blood work? The only test that really matters is your response to gluten or anything else for that matter. If you are sure that you have a problem whenever you consume something then what other proof do you need. On the other hand if you cannot handle family members, friends etc. questioning your lifestyle change based on "your" findings then you might consider another approach. Personally I could care less what anyone else thinks about what I may eat or drink as long as it makes me feel fine. Insurance, school needs for children etc. are factors others consider when facing this decision (further testing). If you are sure that gluten is a factor in your health I would try to find a doctor who might give me a diagnosis based on diet response which would help in being able to request gluten-free for you and your family in the future. I hope this helps.

Tom

TammyK Apprentice
I could not agree more. Why get a full panel with negative blood work? The only test that really matters is your response to gluten or anything else for that matter. If you are sure that you have a problem whenever you consume something then what other proof do you need. On the other hand if you cannot handle family members, friends etc. questioning your lifestyle change based on "your" findings then you might consider another approach. Personally I could care less what anyone else thinks about what I may eat or drink as long as it makes me feel fine. Insurance, school needs for children etc. are factors others consider when facing this decision (further testing). If you are sure that gluten is a factor in your health I would try to find a doctor who might give me a diagnosis based on diet response which would help in being able to request gluten-free for you and your family in the future. I hope this helps.

Tom

Tom, you know, I "kind a" got a dx. What do you think of this? I went to see my ENT (Ear, Nose, Throat Specialist) for an ear infection, I quickly told him of the onset of seizures for my daughter and how it was gluten related, how I eliminated it and now she is doing well. He casually says, "Oh, that would be celiac". Gets up, puts our charts away and finishes up with us. Subject closed. Of course nothing was added to the chart. He had anothe patient and he was done with her ears.

Amazing from an ENT. CRAZINESS. 9 yrs ago when seeing him regulary for ear problems, I ask him if my dd problems could be related to milk. The answer was NO WAY. Took her off milk, the dripping infections STOPPED. He has come full circle.

white ridges Newbie
What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.
white ridges Newbie

Of course your physical reactions will not change whether or not you are tested and I agree that the Enterolab tests can be expensive. However, this is how being tested has influenced me:

Having those results in print in front of me gave me ammunition. Ammunition to fight off the temptations of people saying," just have ONE bite, it is SOOOO delicious and one bite won't hurt you". Well, one bite cetainly can hurt me. It helps give me the courage and confidence to explain and ask for what I need in a restaurant. Wanting to heal my body after seeing the results of those sky-high malabsorbtion scores gives me the determination to read every single lable on foods and supplements, etc. It gives me the wisdom to question everything--what does 'all natural' mean? What is in that chicken broth that you inject in your deli roast chicken? What are those natural flavors? Having the results of those tests in front of me helps me not to give in to temptation and not feel like I am being finicky and picky. For me the price was worth the Validation and resulting Credibility.

TammyK Apprentice
Of course your physical reactions will not change whether or not you are tested and I agree that the Enterolab tests can be expensive. However, this is how being tested has influenced me:

Having those results in print in front of me gave me ammunition. Ammunition to fight off the temptations of people saying," just have ONE bite, it is SOOOO delicious and one bite won't hurt you". Well, one bite cetainly can hurt me. It helps give me the courage and confidence to explain and ask for what I need in a restaurant. Wanting to heal my body after seeing the results of those sky-high malabsorbtion scores gives me the determination to read every single lable on foods and supplements, etc. It gives me the wisdom to question everything--what does 'all natural' mean? What is in that chicken broth that you inject in your deli roast chicken? What are those natural flavors? Having the results of those tests in front of me helps me not to give in to temptation and not feel like I am being finicky and picky. For me the price was worth the Validation and resulting Credibility.

I do see what you are saying in your case. One bite of a cookie gave my dd a seizure she won't forget. This is enough ammunition for me. I think this may be determined by how big the bite is from eating the gluten. ???

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,832
    • Most Online (within 30 mins)
      7,748

    Duhgirl
    Newest Member
    Duhgirl
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.