Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Tests


TammyK

Recommended Posts

TammyK Apprentice

What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



par18 Apprentice
What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.

I could not agree more. Why get a full panel with negative blood work? The only test that really matters is your response to gluten or anything else for that matter. If you are sure that you have a problem whenever you consume something then what other proof do you need. On the other hand if you cannot handle family members, friends etc. questioning your lifestyle change based on "your" findings then you might consider another approach. Personally I could care less what anyone else thinks about what I may eat or drink as long as it makes me feel fine. Insurance, school needs for children etc. are factors others consider when facing this decision (further testing). If you are sure that gluten is a factor in your health I would try to find a doctor who might give me a diagnosis based on diet response which would help in being able to request gluten-free for you and your family in the future. I hope this helps.

Tom

TammyK Apprentice
I could not agree more. Why get a full panel with negative blood work? The only test that really matters is your response to gluten or anything else for that matter. If you are sure that you have a problem whenever you consume something then what other proof do you need. On the other hand if you cannot handle family members, friends etc. questioning your lifestyle change based on "your" findings then you might consider another approach. Personally I could care less what anyone else thinks about what I may eat or drink as long as it makes me feel fine. Insurance, school needs for children etc. are factors others consider when facing this decision (further testing). If you are sure that gluten is a factor in your health I would try to find a doctor who might give me a diagnosis based on diet response which would help in being able to request gluten-free for you and your family in the future. I hope this helps.

Tom

Tom, you know, I "kind a" got a dx. What do you think of this? I went to see my ENT (Ear, Nose, Throat Specialist) for an ear infection, I quickly told him of the onset of seizures for my daughter and how it was gluten related, how I eliminated it and now she is doing well. He casually says, "Oh, that would be celiac". Gets up, puts our charts away and finishes up with us. Subject closed. Of course nothing was added to the chart. He had anothe patient and he was done with her ears.

Amazing from an ENT. CRAZINESS. 9 yrs ago when seeing him regulary for ear problems, I ask him if my dd problems could be related to milk. The answer was NO WAY. Took her off milk, the dripping infections STOPPED. He has come full circle.

white ridges Newbie
What can Enterolab testing really tell you? I already know we are "sensative" to gluten. My N.D. recommended the full panel after getting neg. blood work. I'm not sure why I should spend the money.
white ridges Newbie

Of course your physical reactions will not change whether or not you are tested and I agree that the Enterolab tests can be expensive. However, this is how being tested has influenced me:

Having those results in print in front of me gave me ammunition. Ammunition to fight off the temptations of people saying," just have ONE bite, it is SOOOO delicious and one bite won't hurt you". Well, one bite cetainly can hurt me. It helps give me the courage and confidence to explain and ask for what I need in a restaurant. Wanting to heal my body after seeing the results of those sky-high malabsorbtion scores gives me the determination to read every single lable on foods and supplements, etc. It gives me the wisdom to question everything--what does 'all natural' mean? What is in that chicken broth that you inject in your deli roast chicken? What are those natural flavors? Having the results of those tests in front of me helps me not to give in to temptation and not feel like I am being finicky and picky. For me the price was worth the Validation and resulting Credibility.

TammyK Apprentice
Of course your physical reactions will not change whether or not you are tested and I agree that the Enterolab tests can be expensive. However, this is how being tested has influenced me:

Having those results in print in front of me gave me ammunition. Ammunition to fight off the temptations of people saying," just have ONE bite, it is SOOOO delicious and one bite won't hurt you". Well, one bite cetainly can hurt me. It helps give me the courage and confidence to explain and ask for what I need in a restaurant. Wanting to heal my body after seeing the results of those sky-high malabsorbtion scores gives me the determination to read every single lable on foods and supplements, etc. It gives me the wisdom to question everything--what does 'all natural' mean? What is in that chicken broth that you inject in your deli roast chicken? What are those natural flavors? Having the results of those tests in front of me helps me not to give in to temptation and not feel like I am being finicky and picky. For me the price was worth the Validation and resulting Credibility.

I do see what you are saying in your case. One bite of a cookie gave my dd a seizure she won't forget. This is enough ammunition for me. I think this may be determined by how big the bite is from eating the gluten. ???

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748

    uhlissuh
    Newest Member
    uhlissuh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.