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Gluten Free[dom]


Live2BWell

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Live2BWell Enthusiast

So, I have been so hesitantabout going gluten free. I joined this forum a while ago, and have a plethora of diagnoses which include Diabetes II,Hashimotos,IBS,GERD,Dysphagia,Restless Leg Syndrome, ADD/ADHD, and the list goes on; I have tested positive for food sensitivity to Whole Milk, Egg, Wheat (non-glutenated), Soy, Yeast, Cocoa Bean, Mixed Nuts, & Shellfish.

I had a colonoscopy over a week ago, and and my biopsies came back okay (which it's my understanding that doesn't mean much in ways of gluten intolerance.)

Up until recently, I have been feeling so sick - not only GI wise, but many symptoms from which I am told stem from the autoimmune disorder(s) I have been diagnosed with. I am also told they will "even-out" once I get my thyroid under control, and if they don't, then they have to explore the other conditions such as Fibromyalgia, CFIDS, or Dysautonomia - medical mumbo jumbo if you ask me ~ I don't care what I have, I do care how I feel though!

It goes without saying that feeling poorly physically, has certainly contributed to my feeling poorly emotionally, and I have been depressed. Now that I feel a bit better, I also feel a bit more about taking care of myself better (it could have to do with the fact that I have some energy back and I do not hurt so bad I'm confined to the couch.)

So this morning I woke up, and decided today I was going to go Gluten Free, to see if I feel any better. I have heard so many positive things, and if anything it can't hurt me ... So why am I being so stubborn? I have been fighting it for a while now, but literally woke up this morning and said "why not?," and... so far, I have been successfully gluten free (and it's almost 5pm) - okay, so maybe that's not all that much to be gung ho about, but it makes me proud nonetheless. Ask me again in a few days, and I may feel differently :P

I am also almost done with the book "Living Gluten Free For Dummies" by Danna Korn, and I have to say that it has been my personal cheerleader, and an excellent read on "gluten freedom," as Ms. Korn calls it (I highly suggest it!)

So, here's to DAY #1 of being gluten-free .....


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ohsotired Enthusiast

Jess!

YAY FOR YOU!!!!

I really, really hope that this helps you! Just be strong, and remember to take baby steps - one day at a time.

(((HUGS))) You can do it! ;)

curlyfries Contributor

Jessica,

I am so glad you have decided to take the leap! You won't regret it! Just remember........some symptoms may show an immediate response, others will take longer. If you have any problems or questions, let me know. It takes time to get it right, but it's worth it! :D

Hummingbird4 Explorer

Hi there Jessica! I officially started gluten-free today too. Although I have eaten gluten-free the past few days, but today is my OFFICIAL start-date.

Best of luck to you - and I hope this is the answer you have been looking for! I have the Gluten-free for Dummies book too; also, the Gluten-Free Bible (which I just started reading). I have learned a ton from the books, and this site as well as others. I met with a dietician earlier this week, and it seemed I knew more about celiac disease and the gluten-free diet than she did. :rolleyes:

Live2BWell Enthusiast

ohsotired ~ Hey Chick! It was great talking to you tonight, thanks for the support! I am so excited to hear how you enjoy the book, and for you to get all this figured out too! Have a great night, hon :)

curlyfries ~ Thanks so much! I've already posted a few questions here and there around the forum, feel free to answer any of them (or all of them, LoL !!!) Thanks again for your encouragement B)

hummingbird4~ Yay for you on DAY #1 ! How'd it go?

sickchick Community Regular

Congratulations Sweetheart! Keep positive and optomistic! B)

ohsotired Enthusiast

It was great talking to you too! You need to get really good at this gluten free thing so you can give ME pointers once I start it up again! LOL I'm gonna go pick up the book tomorrow so I can psych myself up for starting the diet again once I'm done with all my stupid tests. Hope tomorrow is another successful day for you!


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gfpaperdoll Rookie

Keep us posted on your progress!!!! Yea for gluten-free!!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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