Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Down

Blessings

By Blessings
in Coping with Celiac Disease

Recommended Posts

Blessings Explorer
Blessings
Posted

Last Sunday I was glutened at Outback. I went through some of my normal symptoms but very mild. Then tonight depression started. It seems so wrong to be doing so good and the wham. I can't even say that this was from last week. We had a picnic today at church and I brought my own foods. Then we had a couple visit that lived here 5 years ago and explaind whats been going on the last few months. I think it is just the emotions of the day. But it feels like my glutened depression. I just get tired of being different.

:(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sickchick Community Regular
sickchick
Posted

oh Sweetie I know....

and being depressed makes it worse too.

thank god it will pass...

breathe and take a hot shower? :)

watch your favorite funny movie?

Beth in NC Contributor
Beth in NC
Posted
Last Sunday I was glutened at Outback. I went through some of my normal symptoms but very mild. Then tonight depression started. It seems so wrong to be doing so good and the wham. I can't even say that this was from last week. We had a picnic today at church and I brought my own foods. Then we had a couple visit that lived here 5 years ago and explaind whats been going on the last few months. I think it is just the emotions of the day. But it feels like my glutened depression. I just get tired of being different.

:(

Blessings, I just now prayed for you, sister. I had a tough day at church as well. I've missed a few meetings in recent weeks with back pain and issues with the Celiac. Today I was in a lot of pain, but was able to manage this morning with alternating ibuprophen and tylenol arthritis. I was so emotional though, all morning! I realized how I am isolating myself at home, away from all the bad food. I send my hubby and son out to eat, but I am scared to go myself. I have hurt all week so badly, and when people want to know how I am, I feel like starting with, "how long ya got?" Then I feel like I'm telling them more than they really want to hear. I was discussing a possible place for a future ladies luncheon and it dawned on me that I'd get to sit there, at my favorite place, and watch everyone else enjoy it. It's just really hard, isn't it?

YoloGx Rookie
YoloGx
Posted

I know what you mean. The same thing happened to me last week after going out to eat my birthday dinner at a supposedly safe restaurant. I didn't get D like in the past so that was the good news. However I got achy and had clogged up sinuses and was very depressed. It finally passed a day and a half later.

I think the thing is is that one needs to really be forward with the restaurant and talk to the manager etc. and go look at where they are preparing the food to really be certain no CC happens. Its a real hassle and sometimes a little embarrassing but it apparently really is needed. Otherwise slip ups happen.

Also its a good idea to take along some heavy duty pro biotics and bromelain/papain caps etc. to counteract possible CC when eating out. It helps. Also slippery elm caps and marshmallow caps help heal inflammation and soothe the intestines.

Hope you are starting to feel better again! Just take it slow and easy since your immune system may have been compromised.

Bea

whitball Explorer
whitball
Posted

I certainly understand how you are feeling. I am praying for you to feel better. The Outback has been a disappointment to me, as I have been glutened twice and both meals were from the gluten-free menu. I explained very clearly to the waiter and it appeared that my instructions and the need to have the food exactly as it was ordered were understood. I think the ball was dropped by the waiter and did not get as far as the cook. Unfortunately, my business with them has ended, as I cannot risk another bout of vomiting for hours. I just have decided that I'm a better cook and eat at home! The depression will end and it does get better. Good luck to you.

greeneyes33 Newbie
greeneyes33
Posted

I understand. This whole thing has me very depressed as well. I'm hoping as I get the hang of it, it will be easier and I wont be so sad...or mad depending on the day..

I had an issue with Outback too. That has been the only place that I would go because the had a gluten-free menu. Well I ordered off the gluten-free menu and even talked to the waitress who seemed very good with everything. I got my meal and was eating and I had just said to my SIL who was with me that it was nice to feel safe at a resturant and I looked down at my plate and there was a french fry half way under my chicken. Outbacks fries are not gluten free. So ok, maybe it was just a fluke thing, but if they are supposed to be as careful as they say they are, then one of their gluten filled french fries should not have been on my plate. I was devastaed. Not so safe any more. They did take my plate and bring me a new one, and took it off our bill, but that wasn't really the point. I convinced myself that I would be fine. I didn't touch the fry or anything, so I wasnt' going to get sick. Well, so much for positve thinking. The whole next day was horrible. My stomach was just a mess and I felt like I hadn't slept in a week. I'm just not going to take the chance eating out anymore, its just not worth it. And yeah, that is depressing too.

This disease is a very emotional thing too, not just physical. I so understand the depression and saddness. You are not alone...

sickchick Community Regular
sickchick
Posted

How are you doing today Sweetie? :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Chrissyb Enthusiast
Chrissyb
Posted

I hope you are doing better today :lol: Life with Celiac can be so draining on us both on our bodies and emotionally but we press on dont we. Luckly we have this awesome site to come to for support.

Blessings Explorer
Blessings
Posted
  • Author

Hey guys

Thanks for the prayers and support. I am feeling so much better today. Just resting. I'm tired of doing nothing.

Yesterday I did some running around and bought some dried Plautos. They were so yummy but I spent the afternoon visiting the restroom. Felt like I had a Phosopho Soda. At first I thought it was a reation to a Humira shot but it had to be the dried fruit. I didn't have anything else new.

Always something. I see my counselor tomorrow. We are supposed to talk about an anti depressant. We'll see.

God Bless,

Vicky

YoloGx Rookie
YoloGx
Posted

Dried fruit is always iffy for me too. Besides just the candida/fungal issues I discovered a lot of it is dusted with gluten to keep it from sticking together...

I question anti depressants when just avoiding these hidden pitfalls works much better--especially since it takes a while to find an anti depressant that actually works for you plus getting used to it.

Bea

sickchick Community Regular
sickchick
Posted

Hopefully it won't be too bad or last too long, Doll.

B)

Blessings Explorer
Blessings
Posted
  • Author

I had double checked the ingredients and it said

Ingredients

dried pluots (pluots, sulfer dioxide)

Product of USA

Members Mark brand from Sam's Club

I am going to try it again to see if it was them. I only had 5 of them.

God Bless,

Vicky

Meleficent Rookie
Meleficent
Posted

I am glad to hear that you are feeling better. I am with you on the down side of things, but my problem is that people have been bringing in lots and lots of sweets to work and I want them so bad! I am such a sweet freak, and not being able to enjoy things every day for 2 weeks has gotten me down. But, I know that this too will pass......

Blessings Explorer
Blessings
Posted
  • Author
I am glad to hear that you are feeling better. I am with you on the down side of things, but my problem is that people have been bringing in lots and lots of sweets to work and I want them so bad! I am such a sweet freak, and not being able to enjoy things every day for 2 weeks has gotten me down. But, I know that this too will pass......

Meleficent

Make a gluten-free cheesecake and bring it in. I use Midel Pecan cookies and use the whole bag. I bake the crust while I mix the filling. I use Pamels Baking mix instead of flour and I use the regular Better Homes and Garden recipie. It will satisfy all your sweet needs. I have also used Pamelas simple bite chocolate cookies. I had to special order them. MMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMM

God Bless,

Vicky

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748
    Newest Member

    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.