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Hello From Newbie. Mom Of Possible Wheat/gluten Allergic Child


ON.Mom

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ON.Mom Newbie

Good day. Just wanted to introduce myself...I am a Mom to a 11 year old boy. When he was about 6 weeks old we figured out he was reacting to milk and milk products. Ever since then, he has had to be very careful of what he eats. We read everything, everytime we purchase it.

Recently we took him to our family doctor because he was losing weight - 7 lbs in 1 month. He is underweight to begin with - always has been. He hadn't doubled his birth weight at a year. He now weighs in at a hefty 56.5 lbs, up a 3.5 lbs from 4 months ago. Anyway, our famly doctor suggested we "monitor the situation", so I immediately made an appt with our Naturopath. We decided to have a "Food Specific IgG Antibody Assessment" done.

I received those results today, and he shows moderate reactions to wheat gliadin, gluten, spelt, eggs, and high reaction to whole wheat.

The suggestions from the lab are to eliminate the reactive products from his diet for a minimum 3 months. Which we plan on doing. I have been doing research all afternoon, and it brought me to this site.

Any suggestions are welcome! I am already used to making food from scratch, so that is not a problem for me. He loves to bake and cook, so I am hoping to empower him by having him help.

Thanks everyone, I look forward to learning more from all of you!

  • 3 weeks later...

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momofboys05 Newbie

Hi, im a mom of a 7 yr old, who hasnt been diganosed yet, but gi dr is pretty postive it is. Since he started kindergarden 2 yrs ago, he began to have bathroom issuies. (pooping and peeing himself and not telling anyone), he weighs all of 34 lbs and is 43" tall. He is ADHD and is on a med called vyvance. Its a wonderfull medication for him. It has helped soo much. The first year of kindergarden he was walking out of the class room, jump around like a frog, hiding under tables and so on. The second year of kindergarden he was on the meds and was able to sit down like a regular child and be able to learn what everyone else was doing. He will poop himself and not tell anyone. Its been very frustrating. Had many people tell me that he's doing it for attention. But he is a happy kid, loves to learn and play. Any info you might have learned that might be helpfull to me and my family would be most apprecaited.

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    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
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      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
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