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Supplements...herbal...

knitaddict

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knitaddict Apprentice
knitaddict
Posted

I wonder if I should start taking a probiotic?? I've heard that they're good...for....ahem......loose stools. :ph34r: Wonder if it would help me? Do any of you guys have any experience with these sorts of supplements...and any others that you might be able to recommend would be GREAT!!!

(I just had my first bout of stomach flu post-dx and it has kicked my BUTT, I'm trying to get back to where I was!)

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jtangema Apprentice
jtangema
Posted

I would highly recommend taking Florajen. It states right on the bottle that it is gluten free. Probiotics work great to get the normal gut bacteria working properly. It has a very high cell count and the bacteria are supposed to be better ones than those found in other probiotics. It needs to stay refridgerated but if you are gone, the capsules can stay good from 2 weeks. Here is the website link Open Original Shared Link

Jennifer

  • 2 weeks later...
knitaddict Apprentice
knitaddict
Posted
  • Author

Well, my Mom got me "Sustenex." I wasn't sure, but after checking it out on their site, they ARE gluten free!

Now, I don't wanna get anyone's hopes up or anything....but I was still on the "loose" side even after several weeks of a gluten-free diet....as SOON as I started taking this probiotic.....I mean the VERY NEXT DAY.....I had nearly normal stools! And it has continued!!! I've been taking it for about a week and I just keep getting better and better!!! I'm still gluten free...but I think that maybe the combo of the two just really gave me the boost I needed....especially after having that bad bout of stomach flu... I think it help get my "chi" realigned or something.... :lol: Whatever it did, I'm GRATEFUL! :D

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  • Recent Activity

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      - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Positive biopsy

      This is a good point. The primary things I’ve been able to tolerate are crackers and pretzels and bread slices (also rice and potatoes but ntp). I’ve been loading up on gluten based snacks so the testing should be valid as far as I understand.
    2. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Positive biopsy

      Your total IgA is normal. This test is run because if you are deficient in IgA the celiac specific IgA tests might not be valid (might not detect celiac disease). Hopefully some of those other tubes of blood will include other tests for celiac antibodies which might include Tissue transglutaminase (TTG) IgA and IgG, Deamidated gliadin (DGP) IgA and IgG,...
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      - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      This is a good point. The primary things I’ve been able to tolerate are crackers and pretzels and bread slices (also rice and potatoes but ntp). I’ve been loading up on gluten based snacks so the testing should be valid as far as I understand. 
    • trents
      Positive biopsy

      By trents · Posted

      Just one thing I will add that you need to be aware of. If by some chance you had been avoiding gluten or eating less of it than what would be normal for most healthy people, the antibody results for celiac might still be negative. I understand that one of the symptoms of SMA syndrome is difficulty in eating because stuff isn't moving through like it should. Valid celiac antibody testing requires the consumption of normal/generous amounts of gluten for weeks/months ahead of the blood draw.
    • RMJ
      Positive biopsy

      By RMJ · Posted

      Your total IgA is normal.  This test is run because if you are deficient in IgA the celiac specific IgA tests might not be valid (might not detect celiac disease). Hopefully some of those other tubes of blood will include other tests for celiac antibodies which might include Tissue transglutaminase (TTG) IgA and IgG, Deamidated gliadin (DGP) IgA and IgG, and Endomysial antibody (EMA).  They don’t all have to be positive to indicate celiac disease. Please let us know the results when you get them.  We will probably then say “welcome to the club you never wanted to join.”
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Hi all. Thank you for the responses. I hope I’m responding right, lots of new things this week. I also thought it was a long shot to get any real responses.  Clarifications — the positive biopsy was an accidental finding. I had an endoscopy as a precautionary measure. I was recently diagnosed with SMA syndrome and before surgery they wanted the upper endo to confirm no other problems were hiding.    I had the bloodwork drawn after the biopsy came back positive. Celiac came out of left field. The result I have of 114 is for total IgA on scale of 70-400 mg/ml. There is allegedly another pending lab (they took 4 tubes, only IgA has resulted and I cannot see pending tests until tests are confirmed). 
    • RMJ
      Positive biopsy

      By RMJ · Posted

      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
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