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12bGF

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12bGF Rookie

Hi, I'm new here. Great site & I have found many of the posts helpful!

I find that since I've gotten off gluten, I am always hungry!

Not to mention my budget is hurting......

I'm not having a great start to this life...


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MySuicidalTurtle Enthusiast

Hello! You'll get familiar with this new lifestyle very fast. It is hard but well worht it!

celiac3270 Collaborator

Yes, it does get much easier and much more natural. It will never get easy--you're always worried about contamination and reading labels, but it does get better. Do you have any specific questions?

Niteyx13 Explorer

I can relate, but it will get better. :)

angel-jd1 Community Regular

Like everyone has said, it DOES get easier. Things are very overwhelming in the beginning. Hang in there.

There is a good thread that was started about shopping on a budget. You might want to check that out, has tons of great ideas for those of us without a large bank account ;) .

-Jessica :rolleyes:

angel-jd1 Community Regular

Here is the link to the thread for shopping on a budget!!

Open Original Shared Link

-Jessica :rolleyes:

ianm Apprentice

It takes a while for your body to adjust to the new lifestyle. The hunger goes away and you will find yourself eating much less than you used to. that is what happened with me. I can eat better foods and spend less money that I used to.

Ianm


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Carriefaith Enthusiast
I find that since I've gotten off gluten, I am always hungry!

I find that Tinkyada brown rice pasta is very filling and it isn't that expensive. I eat this pasta with Ragu sauce all the time (My personal favorite is Herbed Tomato & Wine).

ummmmmmmmmm :P

Chili is also very filling. Here is a recipe:

Hamburger

Heinz beans in tomato sauce

Heinz Chili style red kidney beans

Heinz Tomato Sauce

McCormick Chili Powder

You can also add red/green peppers, onions, corn, and/or tomatoes.

12bGF Rookie

Hey, thanks for the support everyone!

In a lot of books & websites they say to have a support group to help you.

I find that is ture! It's tough doing this alone. I appreciate the advice as well.

I have so many questions it's overwhelming. Right now I'm just trying to read as much information as I can to better educate myself with this. I figure: the more I know, the easier this will be.

(I'm trying to stay positive :D )

celiac3270 Collaborator
Hey, thanks for the support everyone!

In a lot of books & websites they say to have a support group to help you.

I find that is ture! It's tough doing this alone. I appreciate the advice as well.

I have so many questions it's overwhelming. Right now I'm just trying to read as much information as I can to better educate myself with this. I figure: the more I know, the easier this will be.

(I'm trying to stay positive )

It sounds like you have the right attitude. I live in New York City where I know I could find support groups where you meet with people in person, but I love this site and this is the best support group I've found! :D I agree with you 100%, too about educating yourself about celiac--that's the attitude everyone should have when starting this diet :).

If you can pick out some of the most important questions, I'm sure we can help. It might help just to post a numbered list of things you don't understand or need links for or whatever.

rmmadden Contributor

Welcome Aboard 12bGF!

This message forum can be very theraputic in that answers to your questions can be found, as well as advice from true celiac disease veterans. Don't be afraid to ask questions. Dealing with celiac disease can be frustrating as we all have found out. Some days are good and others not so good. Keep your chin-up and get yourself well.

Cleveland Bob :)

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    • xxnonamexx
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      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
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