? About Celiac Rash

[tj's mom]

Hi guys,

You are all so insightful, so I have another question. This morning my son (whom we plan to test for Celiac ASAP) woke up with a small rash on his upper back. It consists of 5 small dots about the size of a pencil eraser. They are red and slightly raised. He said they are VERY itchy. There also what looks like the same thing on his hip, two dots. I was wondering if anyone has experience with this type of rash, and if it sounds like it is gluten related. We plan on getting him tested, however, after being dismissed twice from the hospital with abdominal pain of unknown origin, the doctors office will not return my calls. Should I just call and make an appointment for the rash and demand a blood test? Also, I have been told there are several types of tests that need to be done to check for antibodies. Do they generally order all such tests, or do I need to request they do each one?

Thanks guys, I appreciate it!

Sarah

[RiceGuy]

The rash could certainly be gluten/Celiac related, even if it's not DH. Many on this board have experienced all sorts of rashes, eczema, psoriasis, canker sores, blisters...you name it.

You know, that doctors office is acting very irresponsibly. I'd never want to deal with any place like that, even if they eventually agreed to do some tests. I'd suggest looking elsewhere for a medical diagnosis, and AFAIK, you need to really be specific to make sure they do all the right tests. However, keep in mind that the tests are so inaccurate, especially in young children, that no matter what they say, you should follow up with the diet. After all, the gluten-free diet is always the best, most accurate means to know if gluten is a problem, regardless of whether it's Celiac, an allergy, or whatever.

One place which many here seem to like, is Open Original Shared Link. Apparently, they can test for multiple sensitivities too.