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Neg Bloodwork & Neg Biopsy

fanfaire

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fanfaire Rookie
fanfaire
Posted

I've been trying to find an answer and am getting a lot of conflicting information. My bloodwork and biopsy were both normal, so the gastro doc said I didn't have celiac disease. Yet I was extremely symptomatic for six years, which was blamed on IBS. I voluntarily went gluten-free in November and saw dramatic improvement after two months. Could it be that since I never did eat very much gluten, even as a child, that the biopsy sampled an area that still was healthy?

How likely is celiac disease in the presence of normal bloodwork and biopsy? I have a follow up with the gastro doc on Tuesday and am wondering what to tell her.

Dazed and confused.

B)

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Guest jhmom
Guest jhmom
Posted

Hi fanfaire

In my opinion, yes you can have negative blood-work and biopsy and still have celiac disease (I did). A lot of times the reason for this is either the doc did not do that many biopsies or he did not biopsy the section of your small intestines where the damage "could be". Sometimes it takes a while for the damamge to occur.

If you improved on a gluten-free diet then I thihnk you most likely have it. If you want accurate answers please check out Open Original Shared Link . Dr. Fine uses stool panel testing which is more sensitive than the blood however not widely accepted by conventional doctors. This is how I was diagnosed along with many others on this board.

Good luck to you.....

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