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Had My Kids Tested- Negative But Have Symptoms

hadabaday2day

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hadabaday2day Explorer
hadabaday2day
Posted

Hi. I am fairly new here. I have Celiac Disease and I had my kids tested last week. They just had a simple test done because I have no insurance and didn't have the money for a full panel. They had a TTG IgA and a TTG IgG. They both came back negative. My 7 year old daughter has random headaches and stomachaches. Other than that she seems okay. No digestive problems that I can tell. I am more worried about my 2 1/2 year old son. He had problems from the time he was born. He would projectile vomit breastmilk and we ended up having to switch him to Nutramigen which he did okay on. Then eventually we weaned him into whole milk, but that gave him diarrhea and vomiting so we switched to Lactaid because a lot of my family is Lactose intolerant. That worked okay but he still has diarrhea occasionally that I can't explain. He has had eczema since he was born and he gets all sorts of rashes and bumps and one time he had full blown hives. The doctors deemed it "an atypical reaction to his eczema" which is crap. His weight is fine, but he did fluctuate a lot on the growth chart after he turned one until he was about two. He is pretty big for his age now though. I just worry that the test is not a positive indicator that he doesn't have it. Has anyone else had this experience?

I just found out I have Celiac Disease so I am transitioning my kitchen but have not started eating gluten free yet. Is it a good idea to just make the whole house gluten free and see if some of his symptoms resolve? Thanks for any input.

Alia

27

Told I didn't have Celiac 5 years ago even though I had a + Dermatitis Herpetiformis biopsy and a + blood test. Just now figuring out that they should have Dx me then and there. ANGRY.

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