Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neurological Problems?


ellora

Recommended Posts

ellora Newbie

hi i need to chat to someone as doctors in the uk dont listen and havent got a clue. iv got coeliac and DH, my mums also has coeliac and just been diagnosed with MS. I never realised the neurological effects coeliac could have and i have been having problems with my thought patters and things and i was wondering if anyone knows anything. I know theres links with depression but my doctor says not. even though my mum sufffers from depression also. i was an A student at school and as i got older i started to struggle with concentration and its got worse i feel like my mind is slipping away from me. i forget things (i reask questions over again minuits after iv been given the answer and walk out of the house with my cups in hand ect.)and have always been so clumsy that all my teachers and family ect. usd to comment on it. my first word was celetape <(eg. iv just spent half an hour trying to remember how to spell it and cant). im wondering if i have a coordination problem as people also comment on the way i walk. some even say i have a slight limp or dragging of the leg. iv gotton so bad somedays i cant talk and i stop in the middle of things and dont know what im doing. iv heard of legions on the brain with coeliac but i dont know if its related. i have insomnia and really bad dreams when i do sleep. iv always been good at hard work but i was in my last job for seven weeks before i broke down as it was too much. just a shop job but on my last day before i decided to leave i made so many mistakes and i was shaking and felt like my head was exsploding. i dont feel my olds self. i know theres something wrong. i think to everyone else this sounds stupid but to me its scary and i think a doctor will think im mad. thing is though i started a degree four years ago getting top marks and took a years out when i went down hill thinking id get better with rest and didnt and in the end i ended up barely passing. im sorry for the essay i just need help. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



teemaree Apprentice
hi i need to chat to someone as doctors in the uk dont listen and havent got a clue. iv got coeliac and DH, my mums also has coeliac and just been diagnosed with MS. I never realised the neurological effects coeliac could have and i have been having problems with my thought patters and things and i was wondering if anyone knows anything. I know theres links with depression but my doctor says not. even though my mum sufffers from depression also. i was an A student at school and as i got older i started to struggle with concentration and its got worse i feel like my mind is slipping away from me. i forget things (i reask questions over again minuits after iv been given the answer and walk out of the house with my cups in hand ect.)and have always been so clumsy that all my teachers and family ect. usd to comment on it. my first word was celetape <(eg. iv just spent half an hour trying to remember how to spell it and cant). im wondering if i have a coordination problem as people also comment on the way i walk. some even say i have a slight limp or dragging of the leg. iv gotton so bad somedays i cant talk and i stop in the middle of things and dont know what im doing. iv heard of legions on the brain with coeliac but i dont know if its related. i have insomnia and really bad dreams when i do sleep. iv always been good at hard work but i was in my last job for seven weeks before i broke down as it was too much. just a shop job but on my last day before i decided to leave i made so many mistakes and i was shaking and felt like my head was exsploding. i dont feel my olds self. i know theres something wrong. i think to everyone else this sounds stupid but to me its scary and i think a doctor will think im mad. thing is though i started a degree four years ago getting top marks and took a years out when i went down hill thinking id get better with rest and didnt and in the end i ended up barely passing. im sorry for the essay i just need help. :(

I too would be interested in learning more about this....

It was the servere depression that finaly got the attention of a doctor, who found it very easy to recognise I had celiac...My depression and anxiety were so bad...I couldn't watch the news as it would have me stressing so much and upset. But since going gluten free... I have noticed I am so much better at handling stress. But even just today I had the same experience of bad co-ordination and bad memory blanks at work today... like not remembering simple tasks or remembering the right change to give, and not being able to recall a fellow staff members name... I was trying to dig deep into my memory to pull his name and for the life of me, it wouldn't come to me....

harp1 Apprentice

So glad you posted. I've been really shaky for a long time - have essential tremor, and sometimes unsteady on my feet. I've recently started B12 and magnesium shots and everything is improved. My thinking is clearer and memory is improved, as well as my general attitude. I'm not depressed or anxious. WOW. There's so much research about how the brain is effected by celiac, maybe do a search on this forum for more specific details. Good luck :P

ps have you had your thyroid checked? Big part of the picture too.

caek-is-a-lie Explorer

Gluten gives me non-epileptic seizures, Narcolepsy with Cataplexy (paralysis), depression, anxiety attacks, foggy brain, memory problems, disrupted sleep, moodiness, etc...

Someone posted a great link to Open Original Shared Link here a little while ago and they describe in more detail what can be going on. They even mention antigliadin antibodies can be found in the cerebral spinal fluid of people with gluten-induced neurological problems, even if they don't have classic Celiac villi atrophy or anything. I thought that was really fascinating. Gluten can so profoundly affect people in different ways and yet it still so misunderstood by the medical community.

lbd Rookie

Here is a link to a site listing several articles that you can take to your doctor about neurological manifestations of gluten toxicity:

Open Original Shared Link

For myself, the primary way I respond to gluten is with migraines and brain fog. I teach high school and I thought I was starting to suffer from early Alzheimer's or at least getting old, since I would lose words, forget things, etc. That is all gone now with a gluten free diet! I can't believe how sharp my mind seems again.

Laurie

  • 5 months later...
Pattygallegos Newbie

Hi: I hope I can help you a little I have a 10 year old suffering with the same problems, bad memory, she used to walk on her tippy toes and had coordination problems. It when so far that last year in June she has her first seizure it was so strong that I thought she was going to die.

Lately I have realized that most of her problems are in her diet, she used to love popcorn in very way and form. When we start reading the labels of the food we used to eat we saw that most of it is corn in different colors and shapes, even vitamins have corn.

Since then we are more careful with the food we eat and we all feel so good and happy. Think about it. We are what we eat.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.