Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shortness Of Breath

Darko21

Recommended Posts

Darko21 Newbie
Darko21
Posted

Need help...

The first week after going gluten free I was feeling fantastic...like switching from black and white tv to HDTV. Second week was just kinda normal (had one accidental ingestion). Now this week it's like my old self...like I'm dying or something.

I can deal with the fatigue, depression, and brain fog, but the shortness of breath is almost unbearable.like someone has a hand around my throat.

This normal at all? Also just got a massive stomach ache after eating cottage cheese, I'd like to suppose they are connected.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mastiffmommy Newbie
mastiffmommy
Posted
Need help...

The first week after going gluten free I was feeling fantastic...like switching from black and white tv to HDTV. Second week was just kinda normal (had one accidental ingestion). Now this week it's like my old self...like I'm dying or something.

I can deal with the fatigue, depression, and brain fog, but the shortness of breath is almost unbearable.like someone has a hand around my throat.

This normal at all? I'm wondering if this is really celiac after all.

Hi, is it shortness of breath or kinda like feeling like you can't take a deep breath at all? Like can't really expand your lungs fully or that someone is sitting on your chest? That might be an odd question but I ask for a reason.

Darko21 Newbie
Darko21
Posted
  • Author

I can take a deep breath, but yea i suppose it feels like someone is sitting on my chest.

Krystens mummy Enthusiast
Krystens mummy
Posted

I get like that too it feels like a small child is sitting on my chest sometimes when I eat gluten I had my heart checked and the doc just gave me an asthma puffer. I noticed it last time I had a cold too and I am sure I didn't eat gluten so I just put it down to the gluten problem gave me asthma.

If anyone knows what it could be please let me know. Thanks

mastiffmommy Newbie
mastiffmommy
Posted
I can take a deep breath, but yea i suppose it feels like someone is sitting on my chest.

My not being able to take a deep breath and the feeling like someone was sitting on me was because of a severe magnesium deficiency brought on by the celiac. I took supplements and it went away.

Darko21 Newbie
Darko21
Posted
  • Author
My not being able to take a deep breath and the feeling like someone was sitting on me was because of a severe magnesium deficiency brought on by the celiac. I took supplements and it went away.

interesting..i have been taking a centrum vitamin two times a day for the past few months...how much did you take?

vikingtom Newbie
vikingtom
Posted

Hi Darko, I occasionally suffer from shortness of breath too. My doctor said that the likelihood was that it was a result of the poor vit and mineral absorption because of damaged intestines.

I know you say you take a multivitamin but even these can be poorly absorbed. I think my shortness of breath arises due to me getting slightly anemic sometimes. To alleviate this I make sure I have a higher than usual intake of Iron as well as sub lingual B vitamins, particularly b12 and folic acid (sublingual which passes directly into your body rather than having to be digested by your damaged intestines). Green leafy vegetables such as spinach, kale and cabbage are also great against anemia especially if they're raw (cooking can destroy a great deal of the vitamin content).

You may not be anemic but I think the shortness of breath comes as a result of poor vit digestion so as your intestines recover so should your breathlessness.

All the best

Tom :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted
I get like that too it feels like a small child is sitting on my chest sometimes when I eat gluten I had my heart checked and the doc just gave me an asthma puffer. I noticed it last time I had a cold too and I am sure I didn't eat gluten so I just put it down to the gluten problem gave me asthma.

If anyone knows what it could be please let me know. Thanks

After I stopped eating gluten I developed some new allergies. If I eat peach I get a rapid asthma response. Maybe you are having an asthma-allergy response to something you eat a little of all the time?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    2. knitty kitty
      0

      Vitamins I Take

    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run...
    5. pothosqueen
      - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748
    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      Mallorca Guide

      By hjayne19 · Posted

      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.