Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many Of You Suffer From Hyperthroidism?

Ms. Skinny Chic

Recommended Posts

Ms. Skinny Chic Explorer
Ms. Skinny Chic
Posted

My doctor recently placed me on Tapazole (Methimazole) for hyperthyroidism. Everyone else seems to gain weight, after going on a gluten free diet. I continued to lose weight, which is scary.

The gluten free diet has improved my health tremendously. Has anyone else struggled with thyroid issues and celiac disease. How long did it take for you to recover from both?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Di-gfree Apprentice
Di-gfree
Posted

Hi, I have celiac and hashimoto's, and I think I'm ok as far as the celiac goes, seeing as I've been gluten-free for about 14 years. I'm having a hard time sorting out the Hashimoto's (or 'recovering')because it's complex with adrenals, low ferritin, low B12, other hormonal craziness, etc., etc., factoring in. And, I'm thin, too, by the way.

How did your hyperthyroidism diagnosis come about? Were you tested for thyroid antibodies?

Keri Newbie
Keri
Posted

Sometimes Hashimoto's can start out as hyperthyroid and then go hypo. or you might have graves disease, which is hyperthryoid. Both are autoimmune thyroid disorders and occur more frequently in people with Celiac disease. you should be tested for thyroid antibodies.

I just found out I have gluten issues, last week, but was diagnosed with Hashimoto's several years ago. We'll see how a gluten free diet will help my throid issues. I also have low iron which I was thinking was related to celiac disease, but maybe it is thyroid related according to the last post? anyone have any thoughts?

  • 3 weeks later...
Ms. Skinny Chic Explorer
Ms. Skinny Chic
Posted
  • Author
Hi, I have celiac and hashimoto's, and I think I'm ok as far as the celiac goes, seeing as I've been gluten-free for about 14 years. I'm having a hard time sorting out the Hashimoto's (or 'recovering')because it's complex with adrenals, low ferritin, low B12, other hormonal craziness, etc., etc., factoring in. And, I'm thin, too, by the way.

How did your hyperthyroidism diagnosis come about? Were you tested for thyroid antibodies?

I was diagnosed with hyperthyroidism because of thyroid antibodies... I have a history of hyperthyroidism.. The doctors had a hard time sorting it out this time, because my body kept exhibiting hypo and hyper symptoms...

I had a hard time with low b 12 also.. My B 12 levels have improved, since I started taking tapazole for my thyroid.

I have alot of the same issues as you....

Ms. Skinny Chic Explorer
Ms. Skinny Chic
Posted
  • Author
Sometimes Hashimoto's can start out as hyperthyroid and then go hypo. or you might have graves disease, which is hyperthryoid. Both are autoimmune thyroid disorders and occur more frequently in people with Celiac disease. you should be tested for thyroid antibodies.

I just found out I have gluten issues, last week, but was diagnosed with Hashimoto's several years ago. We'll see how a gluten free diet will help my throid issues. I also have low iron which I was thinking was related to celiac disease, but maybe it is thyroid related according to the last post? anyone have any thoughts?

How do you get the diagnosis of hashimoto's???? My thyroid has been bouncing all over the place. Sometimes, I have hyper symptoms and other times hyp symptoms..

Di-gfree Apprentice
Di-gfree
Posted
I was diagnosed with hyperthyroidism because of thyroid antibodies... I have a history of hyperthyroidism.. The doctors had a hard time sorting it out this time, because my body kept exhibiting hypo and hyper symptoms...

I had a hard time with low b 12 also.. My B 12 levels have improved, since I started taking tapazole for my thyroid.

I have alot of the same issues as you....

Do you remember the name of antibodies? Can you post your thyroid numbers, if you don't mind? There are two thyroid antibodies we're supposed to check - one for Hashimoto's, and one for Graves', I think. I've only had the TPO (Hashimoto's) antibodies tested, myself (should get the other one done, too). With Hashimoto's we can fluctuate between hypo and hyper - not sure if that actually shows up in bloodwork, though.

Are you taking sublingual B12? With celiac, most of us don't absorb B12, digestively, very well, I don't think - I know I do not.

Nancym Enthusiast
Nancym
Posted

I had Graves disease long before my issues with gluten were identified. I was one of the rare ones who actually GAINED weight while being hyperthyroid. Sheesh!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ms. Skinny Chic Explorer
Ms. Skinny Chic
Posted
  • Author
I had Graves disease long before my issues with gluten were identified. I was one of the rare ones who actually GAINED weight while being hyperthyroid. Sheesh!

I don't know what is wrong with my thyroid... My doctor is scratching his head about it , as well.. My T3 levels have dipped even lower, after taking tapazole.. My TSh is currently 0.04..

What is wrong with me???

  • 3 weeks later...
Kit Newbie
Kit
Posted
I don't know what is wrong with my thyroid... My doctor is scratching his head about it , as well.. My T3 levels have dipped even lower, after taking tapazole.. My TSh is currently 0.04..

What is wrong with me???

Kit Newbie
Kit
Posted
I don't know what is wrong with my thyroid... My doctor is scratching his head about it , as well.. My T3 levels have dipped even lower, after taking tapazole.. My TSh is currently 0.04..

What is wrong with me???

I hope by now you are feeling better...Is your TSH at .04...or does it say <.04? <.04 means it is less than .04 which is the least your particular lab can detect. That means your TSH is unmeasurable. What are your lab ranges and free T3 and free T4...do you know? Do you have reverse T3 numbers?

Hyperthyroidism is extremely dangerous. Before the introduction of anti-thyroid drugs like Tapazole (methimazole) and PPU, there was only a 50% survival rate.

It is expected that your free T3 should fall on Tapazole...you have too much of it, which is why your metabolism is too fast and your weight is too low. Are you seeing an endocrinologist? In the case of hyperthyroidism, you don't want to monkey around with a GP, this is serious stuff.

I have both Hashimotos and Graves' disease, high antibodies for both (TPO and TSI). After seven years on a gluten-free diet (biopsy diagnosed as of May 1, 2002) my thyroid issues haven't resolved, and I bounce back and forth between hyper and hypo. I'm going to finally have it surgically removed next month, and can't wait to be on an even keel again! I have a wonderful naturopath who will put me on Armour (have been on it when hypo) and am looking forward to getting my life back.

Allow me to suggest another site for thyroid disease research. Mary Shomon publishes books on thyroid disease distributed in mainstream outlets (Borders, Barnes and Noble, etc.) and runs this wonderful site that can help you in educating yourself about thyroid disease: Open Original Shared Link

To the person who mentioned gaining weight when hyper...happens to me too. My appetite gets hotter than my metabolism. It isn't that rare, but can make it hard to suspect hyperthyroidism and get a diagnosis. Conversely, my son, who does not show antibodies for either Hashis or Graves' has low T3, and is doing very well on cytomel. He is 19, and at six foot four, only weighs 135 lbs. This after gaining 15 pounds on Cytomel! So his hypothyroidism caused him to be too skinny due to lack of appetite. It also caused some terrible emotional issues he had to deal with for his entire childhood. He is doing much much better now, thank goodness.

Good luck to you both, and make sure you get the proper treatment. An endocrinologist is absolutely a must for hyperthyroidism...it can kill you.

Kit in St. Louis.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,266
    • Most Online (within 30 mins)
      7,748
    nstgroups093
    Newest Member
    nstgroups093
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...