Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Ah-ha! Moment....i Think


BeTheChange

Recommended Posts

BeTheChange Newbie

Hello all! I just had my blood tests taken today to determine whether or not I officially have celiac but having scoured the boards for the past few days, I feel like my myriad of seemingly-unrelated symptoms are suddenly all pointing to celiac (which is both upsetting on one hand and Such a relief on the other!)

My question to you is this: do YOU think this group of symptoms could be related to celiac? I trust the judgment of everyone who is living with it more than mine, so please let me know your thoughts. Thanks a million.

Symptoms:

- Short stature: I'm 4'11 but my mom is 5'4 and my dad is 5'7. No one in the fam. is less than 5'2...except me. :blink:

- Extreme fatigue

- Alternating bouts with constipation (minimal diarrhea, but have been hospitalized for constipation twice before)

- Anxiety

- Mild Depression

- Feeling generally in a "fog" and unable to think clearly/process information like I used to.

- Wholly unproductive (very atypical for me! I just can't seem to focus or find my "drive" any more)

- Anemia

- Discolored teeth (the result of being given tetracycline as a baby due to seizures that I had)

- Minimal breast development (I'm 27 years old with a "barely A" cup while the other women in my family are solid C's--possibly the result of low estrogen?)

- Canker sores inside mouth (not often, but around once every 4-5 months)

- Anorexia and amenhorrea as a teenager

What do you think? I know that the "typical" celiac disease symptoms are gastrointestinal and thinness (I'm pretty average now) but is it possible that the list of my above symptoms above could be the result of celiac too? Or am I trying too hard? (you can be honest with me, I can take it. B)

P.S. The tests I had done were TtG, IgA and EMA, IgA

Thanks so much for reading/listening!! You guys and gals are such an inspiration to me! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice

All of your symptoms could be related to celiac, they could be something else too but some of them I have had and they have gone away on a gluten free diet. I could add a couple more, migraine headaches and boils, also gone.

I hope your tests provide you with some clarity.

It may be that you are not celiac but intolerant to gluten, in my opinion we will see many more people become gluten intolerant as a result of antibiotics. They kill the good bacteria in our gut and allow the bad to proliferate. If you received tetracycline as a child this may have been a factor in tipping your digestion toward ill health.

And welcome. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

    2. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

    3. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

    4. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

    5. - Ello posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,827
    • Most Online (within 30 mins)
      7,748

    ABC reno
    Newest Member
    ABC reno
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
    • Ello
      I have always eaten gluten and never stopped until my recent episode. I started more wheat products as my Dr. requested for the Tissue Transglutaminase Iga Antibody. mye result Value <1.0 Value interpretation: <15.0 Antibody not detected > or =15.0 Antibody detected I do not understand any of it. After eating all that wheat product my body exploded with all sorts of symptoms. I stop gluten ASAP. I am still in the healing process. I started having issues after my surgery. 
    • trents
      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
    • Ello
      Surgery was in April 2023 due adhesions wrapped around my small bowel which caused blockage and had to be removed. Adhesions were so badly entangled that Surgeon could not cut out them, so the resection was performed. July 2025 started having severe yellow diarrhea and sometimes constipation. Just had another episode and was tested for celiac. Blood test stated 1.5 after eating gluten for 2 weeks. Lipase level was 120. Having an CT scan to check the pancreas. I have never had any issues eating gluten and now I am so fearful that I might have celiac. Has anyone had a small bowel resection? I am 65 years old. UGGH! I am still feeling bloating etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.