Elevated Ttg Iga Post 6 Months On Diet

[Grace Maureen]

I was diagnosed with Celiac Sprue in late August of 2008 (via blood tests and endoscopy). My diagnostic TTG IgA test was leveled at 157. I was just retested and now my level is 65. So, my doctor told me that I must be doing a good job with my gluten-free diet as my number has clearly dropped, but everything that i have read has said that it should be at a negative level....So...am I doing things right? Shouldn't my test be negative by now?

I am obssesive about my diet, I even use gluten-free soaps and makeups, etc... I have only eaten out twice since I started the diet in September. I guess my real concern is that one of my prescriptions may not really be gluten-free. That is the only thing that I can think of.

Or could it just be taking this long to drop down to normal?

Also, if one does have a set-back due to a cross-contamination, how long will their numbers typically show positive on a TTG IgA test?Unfortunately, I am part of an HMO, and my doctor admits that neither she nor any of her colleagues are very experienced with celiac, so I have been telling her what tests to order and what needs to be done...so, her telling me that I must be doing well with my diet, isn't a very reliable opinion.

Any opinions or help would be sooooooooooo appreciated.

Thank you!

PS Why can't our doctors just know more about celiac? argh

[JodiC]

I was diagnosed with Celiac Sprue in late August of 2008 (via blood tests and endoscopy). My diagnostic TTG IgA test was leveled at 157. I was just retested and now my level is 65. So, my doctor told me that I must be doing a good job with my gluten-free diet as my number has clearly dropped, but everything that i have read has said that it should be at a negative level....So...am I doing things right? Shouldn't my test be negative by now?

I am obssesive about my diet, I even use gluten-free soaps and makeups, etc... I have only eaten out twice since I started the diet in September. I guess my real concern is that one of my prescriptions may not really be gluten-free. That is the only thing that I can think of.

Or could it just be taking this long to drop down to normal?

Also, if one does have a set-back due to a cross-contamination, how long will their numbers typically show positive on a TTG IgA test?Unfortunately, I am part of an HMO, and my doctor admits that neither she nor any of her colleagues are very experienced with celiac, so I have been telling her what tests to order and what needs to be done...so, her telling me that I must be doing well with my diet, isn't a very reliable opinion.

Any opinions or help would be sooooooooooo appreciated.

Thank you!

PS Why can't our doctors just know more about celiac? argh

your levels are dropping at an adequate rate.