Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleeping 10 Hours/nausea


luciddream928

Recommended Posts

luciddream928 Explorer

Hi all.

I am having the classic symptoms again - sleeping 10 hours, exhaustion, tired muscles, nausea, poor attention span, "short-fused"....

Yesterday I had a soy milk chai at a coffee shop. I called this morning and they used Oregon chai and Silk soy milk, which apparently are both gluten free. I checked their websites.

I have no idea what "got me".... any ideas? Anyone have issues with soy milk? I've heard that one is made from a barley grain (or was that rice milk?) but I cannot recall which one it is.

Thanks so much. Any help is much appreciated.

Rachel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lau3turtle Newbie

I hope you feel better quickly!

Could it be a cross contamination issue? A utensil or hand touching a gluten-y surface and then touching your drink? Or some gluten residue in the equipment they used to make your drink?

I'm very sensitive to gluten, and this is what gets me most of the time, not the actual ingredients in the food I order.

I think, but am not sure, that a brand of milk sub. with the word "Eden" in the name had barley malt.

luciddream928 Explorer
I hope you feel better quickly!

Could it be a cross contamination issue? A utensil or hand touching a gluten-y surface and then touching your drink? Or some gluten residue in the equipment they used to make your drink?

I'm very sensitive to gluten, and this is what gets me most of the time, not the actual ingredients in the food I order.

I think, but am not sure, that a brand of milk sub. with the word "Eden" in the name had barley malt.

Yes you are probably right. I ate out a whole lot this weekend (best friend visiting from out of town) and I asked the waitress if the fryer was a "French Fry Only" one and she said "yes" and on the way out I saw an onion ring skin (I think) on the ground (we were eating outside). So.... possibly that got me.

CC is such a big issue, I guess... unless i have an issue with soy. I had a scratch test done and the 2 allergies I had were wheat and soy. I stayed on soy because I didn't have any symptoms but now I wonder. . . .

Takala Enthusiast

Something in a popular name brand coffeeshop with that combination of ingredients (silk soy milk and chai ) gives me headaches. I have never been able to figure out exactly what it is, but now I tend to just get plain black tea or coffee and I am the one who puts anything else into it. Frustrating.

Soy dream soy milk is the one with the barley enzymes problem that bothers sensitive people.

That said, it's more likely it was the french fries made in a big deep vat fryer. Waitresses are unlikely to understand what you meant. She probably interpreted it as "do you deep fry turkeys in that thing?" and of course not, but she was NOT thinking about what goes on an onion ring. Or a hush puppy cornmeal ball. Or hot deep fried apple pies. Churros dusted with cinnamon sugar. Nacho chips. Who knows what went into that thing before or after the fries. And commercial manufactured frozen french fries can have who knows what put onto them as a taste enhancing coating.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.