Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleeping 10 Hours/nausea


luciddream928

Recommended Posts

luciddream928 Explorer

Hi all.

I am having the classic symptoms again - sleeping 10 hours, exhaustion, tired muscles, nausea, poor attention span, "short-fused"....

Yesterday I had a soy milk chai at a coffee shop. I called this morning and they used Oregon chai and Silk soy milk, which apparently are both gluten free. I checked their websites.

I have no idea what "got me".... any ideas? Anyone have issues with soy milk? I've heard that one is made from a barley grain (or was that rice milk?) but I cannot recall which one it is.

Thanks so much. Any help is much appreciated.

Rachel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lau3turtle Newbie

I hope you feel better quickly!

Could it be a cross contamination issue? A utensil or hand touching a gluten-y surface and then touching your drink? Or some gluten residue in the equipment they used to make your drink?

I'm very sensitive to gluten, and this is what gets me most of the time, not the actual ingredients in the food I order.

I think, but am not sure, that a brand of milk sub. with the word "Eden" in the name had barley malt.

luciddream928 Explorer
I hope you feel better quickly!

Could it be a cross contamination issue? A utensil or hand touching a gluten-y surface and then touching your drink? Or some gluten residue in the equipment they used to make your drink?

I'm very sensitive to gluten, and this is what gets me most of the time, not the actual ingredients in the food I order.

I think, but am not sure, that a brand of milk sub. with the word "Eden" in the name had barley malt.

Yes you are probably right. I ate out a whole lot this weekend (best friend visiting from out of town) and I asked the waitress if the fryer was a "French Fry Only" one and she said "yes" and on the way out I saw an onion ring skin (I think) on the ground (we were eating outside). So.... possibly that got me.

CC is such a big issue, I guess... unless i have an issue with soy. I had a scratch test done and the 2 allergies I had were wheat and soy. I stayed on soy because I didn't have any symptoms but now I wonder. . . .

Takala Enthusiast

Something in a popular name brand coffeeshop with that combination of ingredients (silk soy milk and chai ) gives me headaches. I have never been able to figure out exactly what it is, but now I tend to just get plain black tea or coffee and I am the one who puts anything else into it. Frustrating.

Soy dream soy milk is the one with the barley enzymes problem that bothers sensitive people.

That said, it's more likely it was the french fries made in a big deep vat fryer. Waitresses are unlikely to understand what you meant. She probably interpreted it as "do you deep fry turkeys in that thing?" and of course not, but she was NOT thinking about what goes on an onion ring. Or a hush puppy cornmeal ball. Or hot deep fried apple pies. Churros dusted with cinnamon sugar. Nacho chips. Who knows what went into that thing before or after the fries. And commercial manufactured frozen french fries can have who knows what put onto them as a taste enhancing coating.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to lehum's topic in Super Sensitive People
      11

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    2. - Heavenly Flower replied to lehum's topic in Super Sensitive People
      11

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,416
    • Most Online (within 30 mins)
      7,748

    Heavenly Flower
    Newest Member
    Heavenly Flower
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @Heavenly Flower!  You're off to a good start but you can certainly branch out some. White rice is fairly devoid of nutrition. Baked potatoes with the skin (washed) would be a better choice for the starch unless, that is, you don't do well with members of the nightshade family. Yams or sweet potatoes would be even better because of the beta carotene. Do you have issues with eggs and dairy? How about fresh fish? What about fresh fruit? There are also non gluten alternative grains like quinoa, buckwheat (not related to wheat) groats and sorghum that are sold by companies like Bob's Red Mill that can be used for hot breakfast cereals. Gluten free oats is also an option, though some celiacs can't do oats because the protein in them (avenin) is similar enough to gluten to cause a reaction. Gluten is found only in wheat, barley and rye.
    • Heavenly Flower
      I was just diagnosed with celiac disease after Thanksgiving. I can't imagine what all you had to do to get all the information you have, it just seems so overwhelming. I am still trying to figure it all out and don't know if the information I'm getting is correct. I have been eating only white rice and chicken breast, pork, or steak and fresh vegetables.  Gluten free pretzels and rice cakes to snack on. But that's about it cause I don't know what I can eat it's to overwhelming.  I don't even know what symptom to look for for possible cross contamination cause I also have microscopic Colitis which has the same symptoms as celiac disease. I'm hoping at least being on this forum I can get information that will help me figure it all out. Sorry I am not able to help you and hope you get the relief you are looking for. 
    • Known1
      I just read this article here on Celiac.com.  For anyone interested in or following this thread, they may also want to read this article for additional insight:  
    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.