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Worried And Need Some Help


mamaof2boys

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mamaof2boys Newbie

First I just wanted to say how happy I am to have found this site. My Name is Laurie and I have 3 boys. My youngest boy Charlie is 20 months old and has numerous symptoms of Celiac. He has an appt with the Ped next week and if he hasn't gained any weight she is ordering blood work for him (I will ask for the celiac panel). Here is a list of symptoms and if anyone has any advice I would appreciate it greatly.

*He only weighs 21 pounds....he was born 9.6lbs and gained really fast until about 6-7 months and almost stopped....he has only gained 3 pounds in 13 months!

*He poops anywhere from 4-9 times a day....very very stinky and mucosy.

*Lots of undigested food in his poop.

*Big belly.

*Tiny little bum (I always say it still looks like a newborn baby bum)

*Wakes up numerous times everynight (too many to count)....crying and seems to have stomach pains.

*His appetite is decreasing.

*I have just recently noticed that if he eats a lot of muffins, bread etc in a day the number of poops he has that day and the next couple of days increases dramaticallly.

****forgot to add that when he was 14 months old or so his iron levels were borderline low...he was one number away from having low iron.

He obviously has something going on because of his lack of weight gain and i'm just wondering what are the chances he has Celiac???? Thank you so much for any advice!


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swalker Newbie

All of his symptoms are classic of gluten intolerance even if it's not celiac.

It only takes four days for a food to clear a body. The best test for food intolerances is to remove the food for four days then eat that food, by itself, first thing in the morning on an empty stomach. You'll hopefully notice a reaction within an hour. Reactions range from red cheeks and/or ears, to behaviour differences, either zoning out or uncontrollable energy or anger. Although with gluten how reacts off of it will likely be more telling than the reaction. Some food intolerances can take up to two days and can be headaches, body aches or even depression, which of course would be hard to tell in a baby.

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      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
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