Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Panel Results - Help?

gatewaytobeing

Recommended Posts

gatewaytobeing Rookie
gatewaytobeing
Posted

Hi everyone,

A few weeks ago I asked my GYN to order the celiac bloodwork that someone here recommended. I just received a fax of the results, which are hard to read but here's what I have:

IGG - 99.00 (normal 649-1634) (does this mean I have an immune system disorder?)

IGA - 187.0 (normal 73-358)

IGM - 165.0 (normal 53-251)

Hemolysis Index - No Hemolysis

Icteric Index - 1 (0-15)

Lipemia Index - 4 (0-50)

Endomy IGA - Negative

Endomy A Titer - ?? (can't read some of this, it's T?P, then says SCREEN TEST NEGATIVE, TITER NOT PERFORMED

Gliadin IGA - 3 (no reference range given)

Gliadin IGG - 1 (no reference range given)

Any thoughts on this? My GYN says she's not trained to interpret for celiac. I am actually most concerned about the very low IGG.

Thanks all!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FMcGee Explorer
FMcGee
Posted

Hi! Can your GYN refer you to a gastroenterologist, or can you find an internist who can handle that? Good luck!

gatewaytobeing Rookie
gatewaytobeing
Posted
  • Author

Hi - I was surprised to get only one reply to this. Can someone who understands this bloodwork please tell me if it rules out celiac? Or let me know if the low IGG is something to be concerned about? Thanks ...

Hi everyone,

A few weeks ago I asked my GYN to order the celiac bloodwork that someone here recommended. I just received a fax of the results, which are hard to read but here's what I have:

IGG - 99.00 (normal 649-1634) (does this mean I have an immune system disorder?)

IGA - 187.0 (normal 73-358)

IGM - 165.0 (normal 53-251)

Hemolysis Index - No Hemolysis

Icteric Index - 1 (0-15)

Lipemia Index - 4 (0-50)

Endomy IGA - Negative

Endomy A Titer - ?? (can't read some of this, it's T?P, then says SCREEN TEST NEGATIVE, TITER NOT PERFORMED

Gliadin IGA - 3 (no reference range given)

Gliadin IGG - 1 (no reference range given)

Any thoughts on this? My GYN says she's not trained to interpret for celiac. I am actually most concerned about the very low IGG.

Thanks all!

WW340 Rookie
WW340
Posted

The tests you had done are not the typical celiac panel. It would be difficult to make a celiac determination based on these numbers alone. That along with the very low IGG make this difficult to interpret, as it is possible the low IGG could be affecting the results.

I think your low IGG definitely needs to be evaluated further. Your GYN needs to refer you to someone who is experienced with this.

IGG has to do with your immunity. Your number looks very low. It could be a lab error, that happens, but it certainly needs further evaluation.

WW340 Rookie
WW340
Posted

Double post error.

gatewaytobeing Rookie
gatewaytobeing
Posted
  • Author

Hi, thanks for replying.

I had to go back and find my original post on this site where someone told me what tests to ask for. The celiac panel? They were:

1.Anti-gliadin antibodies (AGA) both IgA and IgG

2.Anti-endomysial antibodies (EMA) - IgA

3.Anti-tissue transglutaminase antibodies (tTG) - IgA

4.Total IgA level.

These are the tests that were on the script for the lab. My faxed print-out copy was admittedly hard to read.

Now that I have this list (above) in front of me, I can see how the two compare.

1. AGA-IgA = 3 and AGA-IgG = 1

2. EMA-IgA = negative

3. ??

4. ??

Instead of having a tTG-IgA and a Total IgA, I have an "IGG" and an "IGA" and an "IGM" as well as some sort of Icteric and Lipemia Index. Whether or not these correspond with what was ordered for lines 3-4, I don't know. Maybe only certain labs do these?

However, the first 2 lines seem correct? And are negative for celiac I assume?

Thanks again,

K

The tests you had done are not the typical celiac panel. It would be difficult to make a celiac determination based on these numbers alone. That along with the very low IGG make this difficult to interpret, as it is possible the low IGG could be affecting the results.

I think your low IGG definitely needs to be evaluated further. Your GYN needs to refer you to someone who is experienced with this.

IGG has to do with your immunity. Your number looks very low. It could be a lab error, that happens, but it certainly needs further evaluation.

WW340 Rookie
WW340
Posted

yes, the first two appear to be part of the celiac panel. Those are indicating negative for celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    2. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    3. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    4. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    5. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.