Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I May Have Celiac, Anyone?


stevie22

Recommended Posts

stevie22 Newbie

I've had stomach problems on and off for years, but it's never been soooo bad that I sought out a physican for it. Back in January of this year, I quit smoking and started Weight Watchers (as to not gain weight during my quit). I'm not overweight by any means (at present 117, 5'4'). I stopped being able to have a bowel movement when I quit and was having to use suppositories (as I wasn't having my routine morning bowel movement that I use to have with a smoke). The problems seemed to get worse about a month into quitting and it started with chest pain. After a few weeks of periodic chest pain (sternum) that radiated to my right chest I went to the ER and they found absolutely nothing wrong with my heart. I also had a chest x-ray and ultrasound of the abdomen in which the gall bladder and kidneys were unremarkable. Nevertheless, I started smoking again because I couldn't bare not having the bowel movements with the intentions of trying to quit again after seeing an MD. I've held off for quite some time on seeing a doctor because I don't have health ins but my boyfriend and I decided if we can go on a vacation then we can afford to pay out of pocket to see a doctor.

So....here I am today, three months now, I have been having horrible chest pain that is accompanied by belching, bloating, burning in the stomach, severe gas that doesn't go away til morning, irregular bowel movements (borderline constipation but when I do go it's loose). You can literally hear my stomach from 5 feet away at all times. When I wake in the morning my belly is fine and flat, as soon as I put a bite to my mouth the gurgleing starts and the bloating begins. I also have a history of migranes that have continued. I've been feeling extremely tired lately and started to get depressed with the unknown regarding what is going on digestively. I have a doctors appt on Tuesday with a GI. I want to be tested for Celiac because my daughter who is now 10 years old was diagnosed at 16 months with it and I'm aware it's hereditary. Also, I read somewhere that a low-fat diet can trigger the symptoms, hence starting weight watchers 3 months ago. What do you think?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

Well, you sure have the symptoms, and your daughter has it. So, there is a higher chance you do, too. It is worth getting tested for.

tommchale Newbie
I've had stomach problems on and off for years, but it's never been soooo bad that I sought out a physican for it. Back in January of this year, I quit smoking and started Weight Watchers (as to not gain weight during my quit). I'm not overweight by any means (at present 117, 5'4'). I stopped being able to have a bowel movement when I quit and was having to use suppositories (as I wasn't having my routine morning bowel movement that I use to have with a smoke). The problems seemed to get worse about a month into quitting and it started with chest pain. After a few weeks of periodic chest pain (sternum) that radiated to my right chest I went to the ER and they found absolutely nothing wrong with my heart. I also had a chest x-ray and ultrasound of the abdomen in which the gall bladder and kidneys were unremarkable. Nevertheless, I started smoking again because I couldn't bare not having the bowel movements with the intentions of trying to quit again after seeing an MD. I've held off for quite some time on seeing a doctor because I don't have health ins but my boyfriend and I decided if we can go on a vacation then we can afford to pay out of pocket to see a doctor.

So....here I am today, three months now, I have been having horrible chest pain that is accompanied by belching, bloating, burning in the stomach, severe gas that doesn't go away til morning, irregular bowel movements (borderline constipation but when I do go it's loose). You can literally hear my stomach from 5 feet away at all times. When I wake in the morning my belly is fine and flat, as soon as I put a bite to my mouth the gurgleing starts and the bloating begins. I also have a history of migranes that have continued. I've been feeling extremely tired lately and started to get depressed with the unknown regarding what is going on digestively. I have a doctors appt on Tuesday with a GI. I want to be tested for Celiac because my daughter who is now 10 years old was diagnosed at 16 months with it and I'm aware it's hereditary. Also, I read somewhere that a low-fat diet can trigger the symptoms, hence starting weight watchers 3 months ago. What do you think?

While usually showing symptoms in childhood, its not unusual to have an uptick in symptom severity later in life. I only started to get really sick when I was about 40. Docs think it was triggered by a serious viral infection I had. They think I had low grade symptoms all my life and my illness kicked Celiac into high gear. Defintely get tested but don't change your diet to full gluten-free until you get confirmation one way or the other. That mistake delayed my official diagnosis by months.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.