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I Think I May Have Celiac, Anyone?


stevie22

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stevie22 Newbie

I've had stomach problems on and off for years, but it's never been soooo bad that I sought out a physican for it. Back in January of this year, I quit smoking and started Weight Watchers (as to not gain weight during my quit). I'm not overweight by any means (at present 117, 5'4'). I stopped being able to have a bowel movement when I quit and was having to use suppositories (as I wasn't having my routine morning bowel movement that I use to have with a smoke). The problems seemed to get worse about a month into quitting and it started with chest pain. After a few weeks of periodic chest pain (sternum) that radiated to my right chest I went to the ER and they found absolutely nothing wrong with my heart. I also had a chest x-ray and ultrasound of the abdomen in which the gall bladder and kidneys were unremarkable. Nevertheless, I started smoking again because I couldn't bare not having the bowel movements with the intentions of trying to quit again after seeing an MD. I've held off for quite some time on seeing a doctor because I don't have health ins but my boyfriend and I decided if we can go on a vacation then we can afford to pay out of pocket to see a doctor.

So....here I am today, three months now, I have been having horrible chest pain that is accompanied by belching, bloating, burning in the stomach, severe gas that doesn't go away til morning, irregular bowel movements (borderline constipation but when I do go it's loose). You can literally hear my stomach from 5 feet away at all times. When I wake in the morning my belly is fine and flat, as soon as I put a bite to my mouth the gurgleing starts and the bloating begins. I also have a history of migranes that have continued. I've been feeling extremely tired lately and started to get depressed with the unknown regarding what is going on digestively. I have a doctors appt on Tuesday with a GI. I want to be tested for Celiac because my daughter who is now 10 years old was diagnosed at 16 months with it and I'm aware it's hereditary. Also, I read somewhere that a low-fat diet can trigger the symptoms, hence starting weight watchers 3 months ago. What do you think?


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MySuicidalTurtle Enthusiast

Well, you sure have the symptoms, and your daughter has it. So, there is a higher chance you do, too. It is worth getting tested for.

tommchale Newbie
I've had stomach problems on and off for years, but it's never been soooo bad that I sought out a physican for it. Back in January of this year, I quit smoking and started Weight Watchers (as to not gain weight during my quit). I'm not overweight by any means (at present 117, 5'4'). I stopped being able to have a bowel movement when I quit and was having to use suppositories (as I wasn't having my routine morning bowel movement that I use to have with a smoke). The problems seemed to get worse about a month into quitting and it started with chest pain. After a few weeks of periodic chest pain (sternum) that radiated to my right chest I went to the ER and they found absolutely nothing wrong with my heart. I also had a chest x-ray and ultrasound of the abdomen in which the gall bladder and kidneys were unremarkable. Nevertheless, I started smoking again because I couldn't bare not having the bowel movements with the intentions of trying to quit again after seeing an MD. I've held off for quite some time on seeing a doctor because I don't have health ins but my boyfriend and I decided if we can go on a vacation then we can afford to pay out of pocket to see a doctor.

So....here I am today, three months now, I have been having horrible chest pain that is accompanied by belching, bloating, burning in the stomach, severe gas that doesn't go away til morning, irregular bowel movements (borderline constipation but when I do go it's loose). You can literally hear my stomach from 5 feet away at all times. When I wake in the morning my belly is fine and flat, as soon as I put a bite to my mouth the gurgleing starts and the bloating begins. I also have a history of migranes that have continued. I've been feeling extremely tired lately and started to get depressed with the unknown regarding what is going on digestively. I have a doctors appt on Tuesday with a GI. I want to be tested for Celiac because my daughter who is now 10 years old was diagnosed at 16 months with it and I'm aware it's hereditary. Also, I read somewhere that a low-fat diet can trigger the symptoms, hence starting weight watchers 3 months ago. What do you think?

While usually showing symptoms in childhood, its not unusual to have an uptick in symptom severity later in life. I only started to get really sick when I was about 40. Docs think it was triggered by a serious viral infection I had. They think I had low grade symptoms all my life and my illness kicked Celiac into high gear. Defintely get tested but don't change your diet to full gluten-free until you get confirmation one way or the other. That mistake delayed my official diagnosis by months.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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