Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pinpointing Problem Foods


KarenFe

Recommended Posts

KarenFe Contributor

I really appreciate all the help I've gotten on this site so far. I posted my test results in this thread - post #4.

https://www.celiac.com/gluten-free/index.ph...mp;#entry532702

Since I posted that thread about my negative celiac result from the biopsy, I decided to go completely gluten-free, dairy free, and egg free as a elimination diet. I've been eating fruits, veggies, black coffee, rice, and gluten-free oatmeal as well as a few other things which shouldn't cause a problem. My plan is to add one thing back in at a time.

Yesterday we went out of town for the day and while everyone ate pizza at a pizza restaurant, I had their french fries. That was for lunch yesterday. My bathroom "issues," while seeming to improve, have not really improved to a completely normal state and I understand that could take a while. Anyway, this morning my stomach was "gurgly" which I was not happy with. This afternoon I had the full fledged "D" again and my stomach is still making it's complaints.

The only thing that stands out to me as the possible culprit, considering my diet the last few days, are the french fries. (Edit: I also had red wine) It's possible they contained gluten and I ate them in hopeful ignorance. It's also possible for cross contamination when frying in the oil.

I am mostly wondering if my issues could be something else - I like to be totally sure. I know it will just take time and some more dietary experiments. I'll continue with my "dull" diet to make sure eggs and milk aren't problems to me, although I think one of them might be, but does the french fry incident "prove" my gluten sensitivity. Does it add to the proof that my tests already said?

I guess I'm sort of in denial or surprise at the new course my dietary life is taking me.

Thanks for reading this and for any help! :)

Karen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

The fries probably did it. If they are fried with gluten then you are basically eating the gluten, too. Also, a percentage of people with Celiac Disease have reactions to oats, even if gluten-free. However, it sounds like you got sick soonish after the fries.

nasalady Contributor
Yesterday we went out of town for the day and while everyone ate pizza at a pizza restaurant, I had their french fries. That was for lunch yesterday. My bathroom "issues," while seeming to improve, have not really improved to a completely normal state and I understand that could take a while. Anyway, this morning my stomach was "gurgly" which I was not happy with. This afternoon I had the full fledged "D" again and my stomach is still making it's complaints.

The only thing that stands out to me as the possible culprit, considering my diet the last few days, are the french fries. (Edit: I also had red wine) It's possible they contained gluten and I ate them in hopeful ignorance. It's also possible for cross contamination when frying in the oil.

I am mostly wondering if my issues could be something else - I like to be totally sure. I know it will just take time and some more dietary experiments. I'll continue with my "dull" diet to make sure eggs and milk aren't problems to me, although I think one of them might be, but does the french fry incident "prove" my gluten sensitivity. Does it add to the proof that my tests already said?

I guess I'm sort of in denial or surprise at the new course my dietary life is taking me.

Thanks for reading this and for any help! :)

Karen

Hi Karen,

Yes, you probably shouldn't eat french fries from a restaurant unless you know that they don't fry breaded items in the same fryer. You should call the restaurant and ask them...it definitely would give you some important information one way or the other.

I was surprised to learn recently that wine can be a potential issue, not because wine itself has gluten (of course not!) but because some winemakers seal the oak wine barrels with wheat paste! Please see:

Open Original Shared Link

Perhaps if you call the restaurant, you might ask them about the wine and where it came from. You could then call the winery and ask them about wheat paste. After all, you might be one of the "extra sensitive" people who react to minute amounts of gluten. I certainly am!

Another possibility is that you are reacting to potatoes. Potatoes are a member of the nightshade family and a number of people on this forum have had to give up nightshades (also includes tomatoes and eggplant, I think?).

A third possibility is that you were accidently glutened a day or two earlier and that you're just now reacting. It usually takes me two or three days to have symptoms, although some people react to gluten in less than an hour. Right now I have a canker sore on my tongue and a REALLY bad headache, which tells me I was glutened sometime in the last few days. But I don't know where, because the only food I've eaten is food I've made myself at home.

However I DID drink some wine from a winery we've never tried before. My husband also has celiac disease and has Dermatitis Herpetiformis; he drank some of the same wine and his skin flared up. So we've now concluded that this winery probably uses wheat paste in their barrels. Because we can't think of any other possibility.

Anyway, I've said all of this to show how difficult it can be to track down exactly what the problem is, but you should definitely try, because it's important to figure out just what is causing your discomfort.

Good luck!

JoAnn

KarenFe Contributor

Thanks! I actually did call the restaurant before posting here, but there was a language barrier and I didn't get much information other than they have the fries delivered. It was a pizza place, so I imagine the fries very well could have been fried in "glutened" oil.

It definitely is hard to track down sources of gluten sometimes and even harder as I try to figure out what else bothers me in my diet.

Thanks so much for your replies. You've definitely been helpful.

Karen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.