Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Gain Weight After Diagnosis


gfreegirl0125

Recommended Posts

gfreegirl0125 Newbie

I was recently diagnosed with "undiagnosable" Celiac Disease/Gluten Intolerance. My primary doctor had started me on a G/free diet prior to the testing so they were unable to get a positive with the blood work or the biopsy. Because I had reponded so well to the G/free diet they are confident with the diagnosis.

For years I had been from doctor to doctor, speacialist to specialist. They all said it was IBS-C - Eat more Fiber - Exercise - I tried everything - I basically was ready to throw my hands up - I knew it was more than "IBS" - I was in pain, always tired, thirsty, depressed, I would ravish food almost on the verge of binge eating - I was never satisfied - I was always hungry. I didn't understand.- and then I had lost so much weight - I had always been small but I lost 11 pounds in a month and a half - so I knew there was something wrong and that there had to be an answer out there and so as a last resort I switched primary doctors. She did the routine physical and blood tests - My vitamin D levels were really low - but it wasn't my kidneys, wasn't diabetes, and then she asked if I has ever been tested for Celiac Sprue? I was like what is that? So she explained t ome what is was and she has a GI doctor that works in the same office and scheduled an appointment for me. In the meantime she said to try eating a g/free diet - well I FINALLY felt like myself for the first time in years. I had energy, I was moving my bowels more frequently -

When I went to the GI doctor she said that a lot of times doctors will not test patients for Celiac when the main symptom is constipation - and this leads to a lot of mis-diagnosed patients - Then she continued to tell me that she probably couldn't get a positive on me because I hadn't been eating Gluten but she still wanted to do the blood test, and the endoscopy. But regardless if she could get the positive she was sure that we were on to something - I was in tears in her office! For the first time I had answers! It was a blessing - All these years I would have done anything to feel better - And to think all that I had to do was change my diet -

I have not lost anymore weight since starting the g/free diet and my diagnosis - I am 27, 5'0 and 80 pounds - It is frustrating to not see the scale move - I fight for that 1 pound - I gain a pound - I lose a pound - the doctor tells me not to obsess over the scale that the weight will come - BUT - I am so unhappy with how I look - I don't fit into my clothes and that is frustrating!

I try to stay as positive as possible - The doctors say I should see the scale start to move in the next few months as my body heals and starts absorbing nutrients again -

I just wanted to share my story - if there is one person going through what I am going through - I just want to let them know I understand - It is frustrating, and there is so much information out there that it can be overwhelming - But feeling better and healing is worth all of it -

Does anyone have any advise on how to put the weight on faster or is it a matter of patience at this point?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

First, make sure you are eating enough protein. You need protein with each meal and it wouldn't hurt to have some with snacks too. Then add more good fats to your diet as much as you want. Good fats are dairy fat, you can add a slurp of cream every time you have your whole milk. Add coconut milk to foods and drinks. Eat nuts and avocados. These are all good rescources.

Your body has been starved for a long time. It's using all those nutrients your giving it. Your doctors are right, it will eventually be able to gain but it's replacing its reserves right now.

Be patient and eat well!! Let us know how you're doing. I'm so glad you are finally on the mend.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.