Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Not Tested Yet


whymychildjo

Recommended Posts

whymychildjo Newbie

Hello, I have a 9 year old boy who has been having abdominal pain for about 5 months now. His pain level was about a 8 on a scale of 1-10. About 3 months in I started a Gluten free diet. I have a friend who suggested it. I have not had my son test becuase we do not have insurance and after several thousand dollars in ER and other doctor bills I just did not have the money. His pain level has gone as low as a 3-4 on the gluten-free deit.

I guess my question is... has anyone had a child who expressed pain 2 months after going gluten free. Could we be missing something in the deit? Should we go ahead and test him? We are in the dallas area. Any good doctors who will work with us on payments?

Worried and I do not know what to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmjsmomma Apprentice

Welcome. My son is six months into being gluten free and still complains weekly of belly aches. We were told that it would take a year or so for his intestines to heal. I am also in the Dallas area, we see Dr. Kendall Brown (pedi GI) in Dallas. Not sure if he takes payments or not. I hope that you are able to get help for your son soon.

mommida Enthusiast

Yes, you can be missing something.

Another food sensitivity.

H. Ployri infection

parasite/ worms

Eosinophilic Esophagitis

Celiac Sprue

mistakes on the gluten free diet from cross contamination (hygeine products, pet foods, craft supplies, possibly drywall dust)

Keep a food journal, it can help track down delayed food sensitivities/allergies or intolerances

Pattymom Newbie

That sounds like a good improvement, it did take a while for things to resolve completely here as well. Maybe try taking dairy products out for a while too, give the gut more time to heal. I will confess that I resisted that suggestion for a long time myself, because at least we still had ice cream, yogurt and pizza ( I mastered pizza crust early one--Carol Fenster's recipe-Special diet solutions, good book) but when I finally took it out, it made a big difference. Now I only have one chld who is still off gluten and dairy, ( the dairy gives her eczema, not GI symptoms) and two off gluten. So my boys improved enough for dairy eventually.

Hang in there.

Patty

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      GI DX celiac despite neg serology and no biopsy

    2. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    4. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    5. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,478
    • Most Online (within 30 mins)
      7,748

    Susan Gutenberger
    Newest Member
    Susan Gutenberger
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.