Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Giving Up Restaurants


anonymical7

Recommended Posts

anonymical7 Rookie

Hey all,

Not much of a complainer but I am in Barcelona and my wife and I were hoping for a good restaurant moment when we dropped by one that was recommended. We ordered the black paella (arroz negro) and octopus. We had our celiac card info saved on our iphone and it explained in spanish at least what the things were to look out for. The waitress called over an old codger who perhaps ran the place. He said, no its just fish, and the other ingredients... no other things. He swore it was okay. My wife and I had warning bells going off about the broth, but we decided to trust the owner or head waiter. Within 5 bites I started heartburn and congestion and sure as heck I was on my way down the gluten rabbit hole! :ph34r:

Ugh, anyhow, I am about to give up going out to eat. We love food but I cannot afford to get hit with these things. When we do have to go out we are going to bring along tamari from now on, and when I have to, just eat unseasoned grilled things and fruit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hrly169 Apprentice
Hey all,

Not much of a complainer but I am in Barcelona and my wife and I were hoping for a good restaurant moment when we dropped by one that was recommended. We ordered the black paella (arroz negro) and octopus. We had our celiac card info saved on our iphone and it explained in spanish at least what the things were to look out for. The waitress called over an old codger who perhaps ran the place. He said, no its just fish, and the other ingredients... no other things. He swore it was okay. My wife and I had warning bells going off about the broth, but we decided to trust the owner or head waiter. Within 5 bites I started heartburn and congestion and sure as heck I was on my way down the gluten rabbit hole! :ph34r:

Ugh, anyhow, I am about to give up going out to eat. We love food but I cannot afford to get hit with these things. When we do have to go out we are going to bring along tamari from now on, and when I have to, just eat unseasoned grilled things and fruit.

Hi, I absolutely understand your frustration. After going gluten free I quickly realized that even "safe" restaurants screw up and tend to have cross contamination problems, or a lack of understanding of celiac disease. I have not eaten in a restaurant in 2 years and have healed so much faster. The only cross contamination I have had problems with has been unavoidable things. If you can manage it I highly recommend stopping eating at restaurants, you will feel so much better, plus it is so much more cost effective to cook your meals.

MySuicidalTurtle Enthusiast

Even when your in an English speaking place it can be hard to work out. There are a few restaurants in Barcelona that have gluten-free menus (even gluten-free noodles). Hopefully your next try with plain and fresh items will yield better results! Enjoy the city, and I hope you don't get sick anymore!

anonymical7 Rookie

Yes, we cook in most of the time but this kind of resulted as the final nail in going out. Today on the other hand we went to a Barcelona store that had "celiac safe buns" I was asked to make my special hamburgers. For the others however they got normal buns. Upon getting home and sitting down later to dinner we tried them and they fell apart like sawdust... incredible that they're even sold. I would not buy them if my life depended on it. At least the store (Makro) had the option of celiac products but really, I wish there would be quality control too.

All that said I feel so much better after the night of getting hit with the fallout of the black paella. Stomach pain, the runs, but after a night of rest I was okay. Its always like that but seems to be getting worse the longer I am away from gluten. As long as i am gluten free its all golden.

Mskedi Newbie

It's going to be hard going back to Spain and not having any churros... I've been dreaming about them for years at this point.

But now that I've experienced being glutened, I think I'll be able to resist. Last time I was there, I stayed in an apartment... I guess I'll have to come up with a similar living situation so I can make all my own food. It was hard enough being a vegetarian there... being vegetarian AND gluten-free? That's going to be interesting, to say the least.

I wonder what was in your paella that had gluten. Maybe they used broth with gluten?

MySuicidalTurtle Enthusiast

How weird about the bread. I loved the bread sold in Spain and Portugal that I brought a whole suitcase home full of different products. El Corte Ingles has some good options since you are sticking to eating inside.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.