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Recent Activity
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- lizzie42 replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Confusion about my son's results
These are my sons results. My daughter was high positive on everything and maxed out the tests in addition to being anemic, bad rash, etc. Yes, he has been eating mostly gluten free (not completely). He was also on a high dose of budosinide at the time of testing due to some asthma and sickness. I didn't realize that affects the results. This... -
- trents replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Confusion about my son's results
@lizzie42, Are the results you posted above for your daughter or for your son? If these are for your 5 year-old son, they are strongly positive and definitely suggest celiac disease. The ttg-iga is the centerpiece of celiac disease antibody testing and at 59 it is a strong positive. If you are wondering why some of the other tests are negative, you need... -
- Diana Swales replied to lizzie42's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Confusion about my son's results
If your son is only 5 and his sister is diagnosed celiac disease, is it a possibility that he has been eating a majority gluten free diet with his sister. If this is the case his result would be low or negative. The choice would be yours as to whether to put him in onto a full gluten diet for 4 -6 weeks, handle and NOTE the changes in his diet... -
- aperlo34 replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
advice needed 2 months in... struggling with symptoms
@cristiana Yes - just to add to this: my ferritin went down after my first 2 infusions (which were 8 months ago), so I got more infusions a couple of weeks ago. From those alone, I'm feeling better. It's a work in progress! Be patient! I was also taking iron supplements the entire time. -
- cristiana replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
advice needed 2 months in... struggling with symptoms
@OlafAndvarafors I just wanted to reassure you that I had these same issues for a while before and after diagnosis but they did settle. I think the deficiencies and anxiety that are very common in undiagnosed/newly diagnosed coeliacs are a perfect mix for twitching! I cannot say exactly how long you will experience this but my feeling that once you are...
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