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Chico Ca,


Mey Marie

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Mey Marie Explorer

Hi,

I can't find a group in my area, (Chico, Ca). If anyone knows of one or would like to start one, I would really like to find some one who can meat up and learn together. My husband is having a hard time being supportive because He has never encountered Celiac until I was diagnosed. I would love to send him to a group for spouses. haha

I feel that this big change in my life would be much easier with a friend or 10. :D

  • 3 weeks later...

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snychicolvr6 Newbie

Hi Mey Marie,

I too am in Chico and can not find a group. I am open to starting a group with you. I know a few people who also suffer from the Gluten intollerance / allergy. Please email me @ pokky_6@hotmail.com and we can connect up locally.

Have a great day,

JW

Hi,

I can't find a group in my area, (Chico, Ca). If anyone knows of one or would like to start one, I would really like to find some one who can meat up and learn together. My husband is having a hard time being supportive because He has never encountered Celiac until I was diagnosed. I would love to send him to a group for spouses. haha

I feel that this big change in my life would be much easier with a friend or 10. :D

Mey Marie Explorer
Hi Mey Marie,

I too am in Chico and can not find a group. I am open to starting a group with you. I know a few people who also suffer from the Gluten intollerance / allergy. Please email me @ pokky_6@hotmail.com and we can connect up locally.

Have a great day,

JW

Thank you JW. I am so happy to know that there are people near me who I can talk to. I will email you!

  • 7 months later...
jbay21182 Newbie

I live in Chico California, and am waiting for my blood test and biopsy. I went on a gluten free diet for 2 weeks, and felt amazing. Like I have never felt before. I have been constantly sick for over 5 years. I can't belive I just heard of this disease only a month ago! After going to doctor to doctor. They would just give me some "Try Me" free-be pills after talking to me for only 3 to 4 min. Even my nurse practitioner said, well paraphrase any was "Oh did I check for Celiac Disease on that blood test you took 2 months ago? Oh I don't know.. Oh yes I did, I did. But hmmmm. let me check. Yea I did but they didn't check for it." Eather he was lying because he forgot, or he just wanted to make some monatery gain. Well If I do have it, which I'm 110% positive, I would love to be in a celiac disease support group. If I don't have it, I guess I look like a dummy, and have to keep trying to figure out what I have. : )

Sincerely,

Jason

  • 1 month later...
SueQueBlue Newbie

I am newly diagnosed and live in Willows-just west of Chico about 40 miles. I was diagnosed in July. I also went through the whole cycle of seeing a local GI who never tested for celiac, but did do an upper endoscopy that was negative (I think he only took 2 biopsy samples). My primary care knew I was getting sicker, and tested for celiac as well, but never came up positive. So everyone went with the irritable bowel dx, made worse by having my gall bladder removed (and fibromyalgia, because that is the disease you finally get dx'd with when they can't find anything else wrong. Finally she referred me to a GI down at UC Davis. I got the thorough exam down there, with nothing showing up. She was also going to refer me to a pain clinic due to well, lots of pain! But because some of my inflammatory markers in my blood work have been elevated, she did an IBD panel, which included celiac. I tested positive to one marker, had another upper endo done a couple of days later, and what do you know-it's celiac! And my stomach is a complete mess-inflammed and yucky. In the time frame of about 9 months, my stomach went from some mild spots of inflammation to moderate inflammation, bile backing up into my stomach. It's no wonder I now need 6-8 Vicodins a day to get through the pain.

I went to see a registered dietitian (Mary Hurd Aram), and even though it cost me $90, it was worth it. I have other health issues, and she was able to work around those to get my diet in line. She's taken me off dairy as well, and recommended some supplements to help digest my food better and get some nutrients I haven't been getting thru food. I am very hopeful that with the diet change I will be able to get off my pain meds and some of my other meds.

I would love to meet some gluten free friends, and have no trouble traveling over the river to do so. So if you manage to get a group together, please keep me in mind.

Susan

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    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
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      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
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