Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2 Sons With Food Allergies?

rysmom

Recommended Posts

rysmom Rookie
rysmom
Posted

Hi everyone! I first want to thank everyone who has helped me throughout the years with my first celiac son. Your info has been a true lifesaver! He has been gluten free for 3 years now and I feel confident in the gluten free lifestyle or at least I thought I did :-) until son #2 came along....DS2 is now 1 year and I think I am having food allergies with him as well. I am not so sure that they are gluten issues but b/c you have all been so helpful & knowledgable in the past I was hoping for the same this time around....TIA and thanks for listening!

When ds2 was newborn, he was diagnosed with having milk protein and soy protein allergies and had to be put on Similac Alimentum formula. Once he started that formula it was like I had a new baby, no more crying...just a happy happy baby. At about ten months old, we started to wean him off the Alimentum and onto Similac Sensitive. The doctor said he should have outgrown his "sensitivities" and will be fine. Before this, we were beginning to feed him solid foods, of course. However, with solids we were trying to avoid gluten just to be on the safe side but were not perfect.

I was noticing that glutenfree foods are not always softer foods so I began to get a little bit relaxed with ds2 about glutenfree and gave him more gluten. (ritz crackers, gerber graduates puffs, etc...)

Now, all of a sudden, we are noticing a horrible diaper rash. Not really more poopy diapers like w/ ds1. But, we immediately have taken ds2 off of all gluten. He has been gluten free for about 2 weeks now. The diaper rash is getting better but it is not gone. I am still worried. I am really thinking that it is the formula and he has a different allergy than ds1. I think maybe he is still sensitive/allergic to milk or soy or both.

I really do not know and that is why I am posting here. I wanted to get some advice and do some research before I bring him to the doctors. I always like to have my own knowledge on my side before blindly asking the doctors.....

Thank you for reading my post!

:-) Ry'sMom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nmlove Contributor
nmlove
Posted

I'd go back to what you were feeding him before the problems started. He's a year so he really doesn't need formula, right? I breastfeed so I don't know how long formula goes for. Though I do know it's the main nutrition for the first year. What if you weaned him entirely off formula now or just go back to the original brand?

Then, slowly make changes. Add one type of food, not multiple that'll confuse results. Ritz crackers obviously have wheat but I'm sure they contain dairy or soy. Seems like any processed food contains one or the other! (I'm currently dairy/soy free because of breastfed dd.) For gluten, try Cheerios or some cream of wheat or something. Then after a few weeks (yes, I'd wait that long because I'd hate to start the process over!) try some soy or dairy. Keep it simple. Just a sippy cup of milk or soymilk (keep it plain so nothing else is interfering). If allergic, he won't need a large amount to bother him.

Good luck! By the way, 10 months isn't a magical number to outgrow a sensitivity. From what I understand it can take up to three years. And if it still bothers them at 3 chances are it's with them for life.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,668
    • Most Online (within 30 mins)
      7,748
    CDR40
    Newest Member
    CDR40
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.