Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iodine Patch Test


mhalpin12

Recommended Posts

mhalpin12 Apprentice

Since my skin biopsy for DH came back negative (though it WAS done wrong, and I'm considering another biopsy with a different doctor), I thought I'd try the iodine patch test that I've read about here on these boards. If I get a positive reaction with that, I'll just go Gluten Free.

I bought some Iodine at Walgreens, a 10% concentration that says 1% iodine tincture, soaked a bandaid with it and applied to healthy skin. I made my husband do it, too, as a sort of "control." Left them on for about 18 hours. His skin looks normal, mine looks a little red, but is not itchy or blistery. What does a positive iodine patch test look like? How long does it take to show? Does the iodine have to be of a stronger concentration, and if so, where would I find something like that?

Thanks for any help you can give. Much appreciated!

Michelle in TN


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If the skin is red I would say you are reacting on some level. I would do the test a little differently. Put the iodine directly on your skin then cover it with the bandaid and leave the bandaid there for 48 hours without washing the area. Kind of like the patch test that should be done before coloring our hair, the instructions for that always say to wait at least 48 hours before deciding your not reacting to something in the color.

mhalpin12 Apprentice
If the skin is red I would say you are reacting on some level. I would do the test a little differently. Put the iodine directly on your skin then cover it with the bandaid and leave the bandaid there for 48 hours without washing the area. Kind of like the patch test that should be done before coloring our hair, the instructions for that always say to wait at least 48 hours before deciding your not reacting to something in the color.

I think I will do that. I think, too, that I"ve pretty much decided to go gluten-free and see what happens. I've been debating on going gluten-free or corn-free, or maybe both, couldn't decide which one to try first. I have actual test results that show a corn allergy, but I've never seen any kind of reaction to corn in the past. Last week I ate a huge bowl of popcorn and nothing happened. I'm suffering with an outbreak the past two days after I ate a huge serving of salted pretzels...I'm thinking that it was both the gluten and the iodized salt on the pretzels. Plus, my rash pattern follows the DH presentation perfectly. I have more evidence that it's DH rather than a corn allergy. Ack! I'm kind of panicking, though...could there be a worse time to go gluten-free than December, with all the yummy cookies and treats?! :) I'm ready to stop itching, though, so I'm sticking to it.

Thanks for all the help!

Michelle H. in TN

mhalpin12 Apprentice

Just wanted to add that last night (Sunday), I noticed the little itchy bumps on the site of the iodine patch. It was that insane, burning itching, and just the tiny little bumps that I get with it. My outbreaks never look like the pictures I Google on the internet...they're not large, fluid-filled blisters, just small bumps, which I immediately scratch and make bleed. Anyway, there is a good sized crop of them on the site of the iodine patch, 2 days after the test. I'm taking that as confirmation. I ate nothing but gluten, seafood and iodized salt all weekend, and I'm itching like crazy today. Gluten free diet starts today with a trip to Whole Foods! (or as we call it around here, Whole Paycheck! LOL! :)

Thanks for the help.

Michelle in TN

ravenwoodglass Mentor

It does sound like a positive patch test. I am glad to hear that you are going to go gluten-free. I think it will help a lot. There are lots of gluten-free cookie and cake mixes and even pie crusts to make you holiday eating joyful and calorie filled. Just ask and we will be glad to guide you in making the best gluten-free Xmas dinner you have ever enjoyed. For my family I will be making a ham, Hormel black label, a turkey breast, organic and uninjected with anything, candied yams, mashed potatoes, I am lazy and will use paradise organic dryed, a couple veggies and pumpkin and an apple custard pie using gluten-free cookies for the crust. On Xmas eve I plan on doing pizza with Gluten Free Pantry's French Bread mix and all the toppings. Gee I am making myself hungrey here. Anyway a gluten-free holiday feast can be very enjoyable even for gluten eaters and hopefully by the time the holiday arrives the diet will have cleared your itchies.

mhalpin12 Apprentice
It does sound like a positive patch test. I am glad to hear that you are going to go gluten-free. I think it will help a lot. There are lots of gluten-free cookie and cake mixes and even pie crusts to make you holiday eating joyful and calorie filled. Just ask and we will be glad to guide you in making the best gluten-free Xmas dinner you have ever enjoyed. For my family I will be making a ham, Hormel black label, a turkey breast, organic and uninjected with anything, candied yams, mashed potatoes, I am lazy and will use paradise organic dryed, a couple veggies and pumpkin and an apple custard pie using gluten-free cookies for the crust. On Xmas eve I plan on doing pizza with Gluten Free Pantry's French Bread mix and all the toppings. Gee I am making myself hungrey here. Anyway a gluten-free holiday feast can be very enjoyable even for gluten eaters and hopefully by the time the holiday arrives the diet will have cleared your itchies.

Mmmmm...you're making my mouth water! LOL! :) I can't wait until I'm proficient enough at gluten-free cooking to be able to make all the things you're describing. For now, as I start out, I'm just sticking with whole, unprocessed, naturally gluten-free foods, and some store-bought things. Wish me luck! :)

Michelle in TN

ravenwoodglass Mentor
Mmmmm...you're making my mouth water! LOL! :) I can't wait until I'm proficient enough at gluten-free cooking to be able to make all the things you're describing. For now, as I start out, I'm just sticking with whole, unprocessed, naturally gluten-free foods, and some store-bought things. Wish me luck! :)

Michelle in TN

That's the way to go. You can add in a gluten-free mix or two as you heal and feel up to it. Most of what I make is naturally gluten free and a lot of what you already cook can be made easily by adjusting just a bit. Homemake beef stew is one example, when I make it I just cut some of the potatoes up really, really tiny and those break up and thicken the stew without the need for flour. If you have a favorite pumpkin pie recipe you can always make it without the crust. As time goes on you should see that much of what you alreay cook is easy to make gluten-free or already is.

I do wish you good luck and quick healing. I hope by the time Xmas arrives you are feeling great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,048
    • Most Online (within 30 mins)
      7,748

    Leah Gallagher
    Newest Member
    Leah Gallagher
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Diana Swales
      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
    • Scott Adams
      It’s scary how hidden gluten can be—even in non-food products like hair care! Your experience is a great reminder that topical products with gluten can cause systemic reactions in some people with celiac disease, especially if they’re accidentally ingested (like when shampoo runs down your face). While not everyone reacts to external exposure, your symptoms—joint pain, brain fog, and GI issues—clearly show your sensitivity. It’s frustrating that companies aren’t required to label “gluten-free” on cosmetics, so ingredient checks are a must. Don’t feel stupid; many of us learn this the hard way! Thanks for sharing your story—it’s a wake-up call for others to scrutinize everything, from lotions to makeup. Hope you’re feeling better now that you’ve ditched the culprit!
    • Scott Adams
      It’s possible—though not extremely common—to develop a wheat allergy in addition to celiac disease. While celiac is an autoimmune reaction to gluten, a wheat allergy is an IgE-mediated response to wheat proteins, which can cause allergic symptoms like hives, swelling, or even anaphylaxis. Your recent anaphylactic reaction strongly suggests a true wheat allergy has developed alongside your celiac disease. Research on this overlap is limited, but some people with celiac do develop other immune-related conditions, including allergies. Repeated gluten exposures may have sensitized your immune system over time, leading to this new allergic response. Since wheat allergy involves different proteins than celiac, you could now be reacting to both. An allergist can confirm this with skin prick or IgE blood tests. Moving forward, you’ll need to avoid all wheat (not just gluten) and keep your Epi-Pen handy. Many in the celiac community report similar experiences, so you’re not alone. Glad you’re okay after that scary reaction—thanks for sharing your story, as it’s an important reminder of how complex these conditions can be.
    • Scott Adams
      Congratulations on the new qualification as a Nutrition Coach. Can you tell me if this is the same qualification as a registered dietitian?
×
×
  • Create New...