Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Detroit Mi Area - Please Help!

michiganmom

By michiganmom
in Doctors

Recommended Posts

michiganmom Newbie
michiganmom
Posted

Hi, I am trying to find a gastroenterologist in the Detroit area. I need a doctor that really understands Celiac Disease and believes in the blood test being a valid result and does not have to scope. I believe I am looking for the impossible doctor. I would love a doctor who actually listens to the patient. Can anyone recommend a doctor? Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JennyL Newbie
JennyL
Posted

Hi, I am trying to find a gastroenterologist in the Detroit area. I need a doctor that really understands Celiac Disease and believes in the blood test being a valid result and does not have to scope. I believe I am looking for the impossible doctor. I would love a doctor who actually listens to the patient. Can anyone recommend a doctor? Thank you!

JennyL Newbie
JennyL
Posted

Dear Michiganmom,

I certainly hope I am doing this correctly - I am brand new to this forum, as of 5 minutes ago, lol, and have gotten a lot of error messages...

OK, I consider myself very very fortunate as I have found several excellent Dr's in the Detroit Metro area:

A: Gastroenterologist: Thomas J. Alexander M.D. of Gastrointestinal Specialists PC.

264 W. Maple Rd (15 mile) Suete 200 Troy, MI 48084

Dr Alexander is supposed to be the local expert on celiac disease/I'm told it's his specialty. I've seen another Dr in his practice but heard from others, including my Aunt that Dr. Alexander is an excellent diagnostician, has great bedside manner and is compassionate.

B: Dr. Tamler: He works our of Beaumont Hospital Royal Oak and has an office in the Beaumont Medical Building. Phone# 248-288-2210

He is a physiatrist (SP?) (NOT to be confused with psychiatrist) and is the one who FINALLY diagnosed my Celiac disease based on my gastro symptoms as well as my many broken bones and osteoperosis at age 40. At our first appt he spent over 30 minutes just educating me about Celiac disease; he was personal, friendly, respectful and all around a great Dr. I never felt rushed, he drew pictures of the small intestine to help me understand, and he took the time and answered all my questions and what he couldn't answer told me 'great question, let me find out and let you know, or 'Great question, that's why you're here so we can figure this out...

C: Dr. Sharon Ostabecki: A dietician highly recommended by Dr. Tamler as she herself has Celiac disease. Her phone number is 248-344-0896. She is the one who strongly encouraged me to see Dr. Alexander stating he's the best gastro guy/specialist in Celiac in the metro detroit area.

I'm newly diagnosed after my my 3rd bone fracture in less than 3 years and which occurred despite the fact I didn't even fall or bang into anything, I just twisted wrong...

Good Luck!!!

Jennifer

JennyL Newbie
JennyL
Posted

Hi, I am trying to find a gastroenterologist in the Detroit area. I need a doctor that really understands Celiac Disease and believes in the blood test being a valid result and does not have to scope. I believe I am looking for the impossible doctor. I would love a doctor who actually listens to the patient. Can anyone recommend a doctor? Thank you!

JennyL Newbie
JennyL
Posted

michiganmom,

One more piece of information that I didn't add... You want a Dr that believes in the blood test and doesn't have to scope. I had a blood test done a few years ago by my PHCP that came back negative for celiac disease. Dr. Tamler stated that blood tests are 75% false negative and diagnosed me based on my symptoms. He has no plans to do a scope. I'm not sure if Dr. Alexander has a different view point on that subject... I believe if the blood test is postive, or if your symotoms are strong enough to point to Celiac, the less invasive a doctor needs to be, the better and I would self advocate for that. My personal concern is that the diet is so restrictive, and expensive, I want to be absolutely sure I have celiac before I completely change my life style...

JennyL

michiganmom Newbie
michiganmom
Posted
  • Author

michiganmom,

One more piece of information that I didn't add... You want a Dr that believes in the blood test and doesn't have to scope. I had a blood test done a few years ago by my PHCP that came back negative for celiac disease. Dr. Tamler stated that blood tests are 75% false negative and diagnosed me based on my symptoms. He has no plans to do a scope. I'm not sure if Dr. Alexander has a different view point on that subject... I believe if the blood test is postive, or if your symotoms are strong enough to point to Celiac, the less invasive a doctor needs to be, the better and I would self advocate for that. My personal concern is that the diet is so restrictive, and expensive, I want to be absolutely sure I have celiac before I completely change my life style...

JennyL

Hi JennyL! So nice to find someone in this area who has had positive experiences with doctors. I have heard some good and some bad about Dr. Alexander and that he is a strong believer in scoping. I can not be scoped as I have been gluten free for years and can not do a gluten challenge. Now this Dr. Tamler sounds more like my type of doctor. I did have a positive blood test and that is all the proof I need. If I eat gluten, I get so sick.

I have problems with my thyroid and parathyroid's are not working. I have to take calcium and vitamin d so when my stomach gets upset from gluten or soy or dairy, I have major absorption issues. It is a very long story.

Anyways, I think I will check into this Dr. Tamler. See if he has a website and learn more about him. Did you actually go to him for the gastro problems or was it for another reason?

Thank you so much for the information!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,777
    • Most Online (within 30 mins)
      7,748
    Kd8
    Newest Member
    Kd8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Resada
      Work friends & food

      By Resada · Posted

      Yeah, that one is always hard, especially since life seems to revolve around food. That happened to me 2 weeks ago with hibachi and with Hungarian hot dogs. I used to be more picky, but now I would love to try all the things if I could. On the bright side, my husband is absolutely wonderful with it, and his mom often brings a few certified gluten-free things to family get-togethers just for me (and tries to make sure main dishes are safe too). Having the people closest to you be supportive can make a huge difference. 
    • trents
      Work friends & food

      By trents · Posted

      I hear you. My extended family is very good about factoring in my celiac disease safety needs when making family celebration meal plans but sometimes it breaks down in the spur of the moment decisions to "Oh, let's go out and get some teriyaki" or the like. Especially when my brother in law comes into town 'cause he's pretty particular about what he likes to eat. So, sometimes I just say, "You guys go ahead without me. I'll find some leftovers." But, still, I admit to feeling a little left out at such times and a little like a 5th wheel.
    • Resada
      Work friends & food

      By Resada · Posted

      Same, and I appreciate your comments. I just needed to get it off my chest. Sometimes, even when its a genuine mistake, it can feel all too hurtful and I didn't want to go back to work tomorrow still in my feelings. 
    • trents
      Work friends & food

      By trents · Posted

      Yes, probably slipped his mind. Grace is in order here is my thought.
    • Resada
      Work friends & food

      By Resada · Posted

      I should have added that, while I dont have access during the meetings, I do as soon as I leave them (same for him) so I would have seen before I even left work. He has my number since we've needed to coordinate by cell a few times for work and other stuff. I usually have a protein bar or two in my desk for emergencies so I could have grabbed one of those and gone to meet them at the right restaurant.  Someone else decided on the change of restaurant and it must have slipped his mind that I wasn't coming back to my desk.
×
×
  • Create New...