Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Celiac?


bekkaz

Recommended Posts

bekkaz Apprentice

Hello all: I just joined today and this is my first post. I am wondering if I could have a gluten intolerance or celiac disease. I have previously been told that I have IBS. I have often wondered if I have more than this. I notice that after I eat many times my stomach gets very swollen. It almost appears as though I am 5+ months pregnant. My stomach just get's hugely bloated, I often also cough after I eat. The coughing usually doesn't last long and I would say it's almost like a phlem that develops and once I cough and clear out my throat it's gone. I would say it's not acid reflux, because it doesn't burn nor does it come with heart burn. My husband has also noticed this very swollen stomach. I kept saying I think I might be having a reaction to carbs or something?!? Which gluten would make sense since it's in darn near all bad carbs. Today so far I have eaten a bowl of oatmeal for breakfast. For lunch I had pizza on a pizza buffet. I am swollen, full of gas, and tired/lethargic feeling which is often the case. I really appreciate any responses. Thank you in advance for any help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

Hi, Bekkaz, and welcome!

Bloating (whether sudden or not, extreme or slight), lethargy and gassiness are classic, well-known symptoms of gluten intolerance/celiac. Moreover, many members on this board have had their gluten issues misdiagnosed as IBS (it is often referred to 'round here as "I Be Stumped", as docs seem to often diagnose IBS when they aren't sure what they are dealing with!)..... . .. . . .

I would suggest asking your doc to run the celiac blood panel. You could well get your answer, and start feeling a lot better on the gluten-free diet! :)

ksangie Rookie

You were right on my post... we're both bloated the same way. Five months pregnant looking is not an exaggeration for me either.

As for celiac testing, be sure you have a doctor that knows to give you a full panel. The first time around I was only given an EMA and that is thrown off by IGA deficiency (which I found out a couple of weeks ago I happen to have.) The second time my new doctor did it right and tested IGA and IGG. High IGG doesn't prove celiac, but it darn near does. I'll be having a biopsy on Friday to follow up on my IGG being way out of range.

I hope you can find some answers in blood tests, but if not, you might do what I'm thinking about doing and go gluten-free despite test results just to try it out. I'll get my biopsy results and then bye-bye gluten.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.