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Hello From Tn


Rachel W

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Rachel W Apprentice

Hi everybody ! My name is Rachel, I grew up in FL now living in TN. Here is my story.

A sick child from birth and a family history of "weak" stomachs my parents never really thought anything of my ability to vomit across the room at a young age lol. Constant stomach issues were treated by saltine crackers sprite and never eating during any get together or car trip instead of risking the chance of getting sick.

After a mission trip to Montana at 8 yrs old I contracted the parasite Giardia from swimming and unintentionally drinking the river water, after FINALLY being diagnosed with that after loosing 17 pounds in 1 week my stomach still was getting worse and worse till finally at age 11 I was taken back to the Doctor, who suggested trying Gluten Free for a few weeks, well I remember my parents not allowing me to eat bread for 1 week but still eating cereal and crackers, so my problems were once again called "weak " stomach and treated by just not eating unless I was home to where a bathroom was close, even missed the majority of my senior Highschool year, horse shows and work because of it.

I moved to TN at the age of 19 on my own, still sickly, had a serious horse injury at 20yrs old, fractured tibia, torn LCL, dislodged lumbar vertebra and whiplash- in which the various meds never worked(duhhh I didnt absorb squat,) went through Paramedic school, still sickly, got married, still sickly and Finally after being so weak from not eating anything but peanut butter crackers I fell on a patient while trying to raise the stretcher because I gave out i had NO strength. I went to the Doc who because of a family history of Cancer, Crohns, Diverticulitis and IBD , scoped me and gave me a "Well looks ok...try less fatty foods and Activia yogurt"...Finally after concern from a loved one I went back a yr later, blood was drawn and can back as a RESOUNDING Duhhhh positive for Celiacs , so here I am, almost 24, been affected my whole life. I believe God is Good but reallly did a god job at teaching me patience lol... So I know that was long sorry - but where do I go from here, already feel LOADS better from eating Gluten Free but still some discomfort but I am sure my guts are fried and stomach is the size of a pen cap lol THANK you for listening and advice !


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    • thejayland10
      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
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    • RMJ
      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
    • thejayland10
      Thank you for the clarifcation, how can I get to the bottom of this as to why they may be elevated even on a super strict gluten-free diet? 
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