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Not Sure What To Do


itchy-fingers

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itchy-fingers Newbie

Hi all. I recently stopped eating wheat and am feeling a lot better. When I eat wheat my head feels fuzzy and I am tired. I also have a long history of getting itchy blisters on my right ring finger. My finger swells up and it is very painful. I have seen numerous doctors regarding this and I was just given steroid cream for the rash. I saw a naturopath and he diagnosed me with a candida imbalance. I have a history of yeast infections. Since treating me for yeast infections the itchy fingers have gone away most of the time. I also have polysistic ovarian syndrome. My naturopath said that lots of people with polysitic ovaries are also sensitive to wheat.

I have no problems with my stomach/bowels etc.

I am not sure of where to go from here. I am not going to eat wheat anymore because it just makes me feel so crappy but I am afraid that I could also have other allergies. I don't want to start getting all kinds of medical tests and get freaked out over this but I worry that I could be doing damage to my body and not even know know it! Suggestions?

Thanks all,

F


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my.oh.my Newbie

Sorry to inform you but i suggest you do what you least want to do.... Get yourself tested a.s.a.p. You wouldn't want to have the symptoms haunt you all your life!neither would you wonna live in the world of the unknown. for all we know it might be somthing you can easily heal!

Good Luck!

tarnalberry Community Regular

The problem with getting blood tests or biopsies is now that you've been gluten free, they won't be reliable.

I'm a big fan of "if it hurts to hit yourself in the head, don't hit yourself in the head". Of course, that's harder to do with something so socially prevalent as wheat, but if YOU find that you are confident enough in your conclusion to avoid wheat without testing, it is an option. You'll be left with the question of whether or not you need to avoid the other celiac offenders, though - barley, rye, and possibly oats.

Not everyone develops other intolerances, and some of those are just from eating too much of any particular thing.

There aren't clear cut answers that fit everyone here - the only thing to do is weigh all the options you are aware of, and make the best decision that you can make at the time.

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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