Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Tests And Testing Facilities


Piano

Recommended Posts

Piano Newbie

Hello everyone,

I'm new here and I'm pretty sure that myself and my wife have various allergies probably including gluten (we both have had or currently have almost every one of the symptoms). I am going to get us both tested but I'd like to get some feedback if I can from anyone who wants to share their experience or input to my question below.

I've scheduled an appointment for a food allergy panel and a gluten test at my local clinic and the receptionist says they start with a skin scratch test. But now that I've been glued to this website for the last couple of days and have been doing some more research I'm not sure I want to just have a skin scratch test done. I want results that are as conclusive as possible (obviously).

I've seen that some people here have used Enterolab for the allergy tests they provide and seem to have had good results. I have also found this company called 'IBS Treatment Center' in Seattle which offers what looks to be a ton of items they can test for but I'm have trouble telling if they are being fair with their pricing scheme.

Can someone look at their price list and tell your reaction to their prices and packaging of tests? I was looking at their 96 foods allergy panel and it's kind of confusing. Do I need to have the IgA version of this test done? or just the IgE, IgG version. They have the IgA test as something you can test for separately or together with the IgE and IgG. I have no idea of exactly what I need! Also part of the 96 food test is a test for gliadin (wheat), gluten (wheat). Is this enough to tell if I have a gluten sensitivity/allergy? Because they also sell a test called 'Celiac Disease Testing: Transglutaminase IgA Antibody + Gamma A (total IgA)'.

Lastly there is another place local to me that says that they use ELISA blood test and they send out their tests to US BioTek Laboratories. Not sure exactly what tests they do or how much they cost I just found them on the internet.

I just don't want to spend a lot of extra money getting things I don't really need or on the other hand should have got in the first place and now need to get afterward.

Sorry for the long-winded and perhaps confusing post but I'm overwhelmed and could surely use any thoughts or experiences that any of you might have (have any of you used any of these places btw?). Thank you very much for your time.

EDIT: Apparently you can't post a link to another site? It changes to a different address once I save my post. I can't link to IBS Treatment Center' So if anyone is willing to search them and look at the price list that would be amazing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elle's mom Contributor

Hi! I wish I lived closer to Seattle (I'm in Michigan). I read Dr. Wangen's book (which I would highly recommend) and I would feel very comfortable with letting him handle you and your wife's care. I looked at their prices and to me they seem a little high, but I honestly do not have any basis for this, I have no comparison. I always say though, you get what you pay for and I'm sure he is one of the most knowledgable physician's in the US on gluten intolerance, celiac, and allergies. Just my two cents from reading the book (which again, I highly recommend)......good luck!

BTW, I used Enterolab and I only wish they also tested for additional food sensitivities (currently they only have gluten, dairy, soy, egg, and yeast) and they do not have testing for yeast overgrowth. I was very satisfied with the testing I did have though, which was everything they had available. You get a very comprehensive report and additional email &/or phone consultation afterward as needed, which was very nice.

Piano Newbie

Hi, Thank you for the response. Is the book 'Healthier without Wheat'? I was at a gluten free market this evening and saw a book with that name and Dr. Wangen's as the author and I also noticed that he was the founder of the IBS Treatment Center in Seattle. I didn't get the book at the time but I think I'll go back for it tomorrow.

Thanks for your feedback about Enterolab also. I too wish they had more tests they could perform because I like the model of the service they provide. Not having the doctor visits and just doing labs is surely why they are less expensive than going to a local doctor.

Do you know if it's important to have the IgA version of some of these tests done, or are the IgE and IgG sufficient? It would be great if someone could chime in on what the differences are between these three are and why they would separate the IgA test from the IgE, IgG test. I suppose I may have to call them and inquire about it.

Thank you again for your help

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...