Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Tests And Testing Facilities


Piano

Recommended Posts

Piano Newbie

Hello everyone,

I'm new here and I'm pretty sure that myself and my wife have various allergies probably including gluten (we both have had or currently have almost every one of the symptoms). I am going to get us both tested but I'd like to get some feedback if I can from anyone who wants to share their experience or input to my question below.

I've scheduled an appointment for a food allergy panel and a gluten test at my local clinic and the receptionist says they start with a skin scratch test. But now that I've been glued to this website for the last couple of days and have been doing some more research I'm not sure I want to just have a skin scratch test done. I want results that are as conclusive as possible (obviously).

I've seen that some people here have used Enterolab for the allergy tests they provide and seem to have had good results. I have also found this company called 'IBS Treatment Center' in Seattle which offers what looks to be a ton of items they can test for but I'm have trouble telling if they are being fair with their pricing scheme.

Can someone look at their price list and tell your reaction to their prices and packaging of tests? I was looking at their 96 foods allergy panel and it's kind of confusing. Do I need to have the IgA version of this test done? or just the IgE, IgG version. They have the IgA test as something you can test for separately or together with the IgE and IgG. I have no idea of exactly what I need! Also part of the 96 food test is a test for gliadin (wheat), gluten (wheat). Is this enough to tell if I have a gluten sensitivity/allergy? Because they also sell a test called 'Celiac Disease Testing: Transglutaminase IgA Antibody + Gamma A (total IgA)'.

Lastly there is another place local to me that says that they use ELISA blood test and they send out their tests to US BioTek Laboratories. Not sure exactly what tests they do or how much they cost I just found them on the internet.

I just don't want to spend a lot of extra money getting things I don't really need or on the other hand should have got in the first place and now need to get afterward.

Sorry for the long-winded and perhaps confusing post but I'm overwhelmed and could surely use any thoughts or experiences that any of you might have (have any of you used any of these places btw?). Thank you very much for your time.

EDIT: Apparently you can't post a link to another site? It changes to a different address once I save my post. I can't link to IBS Treatment Center' So if anyone is willing to search them and look at the price list that would be amazing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elle's mom Contributor

Hi! I wish I lived closer to Seattle (I'm in Michigan). I read Dr. Wangen's book (which I would highly recommend) and I would feel very comfortable with letting him handle you and your wife's care. I looked at their prices and to me they seem a little high, but I honestly do not have any basis for this, I have no comparison. I always say though, you get what you pay for and I'm sure he is one of the most knowledgable physician's in the US on gluten intolerance, celiac, and allergies. Just my two cents from reading the book (which again, I highly recommend)......good luck!

BTW, I used Enterolab and I only wish they also tested for additional food sensitivities (currently they only have gluten, dairy, soy, egg, and yeast) and they do not have testing for yeast overgrowth. I was very satisfied with the testing I did have though, which was everything they had available. You get a very comprehensive report and additional email &/or phone consultation afterward as needed, which was very nice.

Piano Newbie

Hi, Thank you for the response. Is the book 'Healthier without Wheat'? I was at a gluten free market this evening and saw a book with that name and Dr. Wangen's as the author and I also noticed that he was the founder of the IBS Treatment Center in Seattle. I didn't get the book at the time but I think I'll go back for it tomorrow.

Thanks for your feedback about Enterolab also. I too wish they had more tests they could perform because I like the model of the service they provide. Not having the doctor visits and just doing labs is surely why they are less expensive than going to a local doctor.

Do you know if it's important to have the IgA version of some of these tests done, or are the IgE and IgG sufficient? It would be great if someone could chime in on what the differences are between these three are and why they would separate the IgA test from the IgE, IgG test. I suppose I may have to call them and inquire about it.

Thank you again for your help

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.