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Does This Look Like Dh?

aimeed

By aimeed
in Dermatitis Herpetiformis

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aimeed Newbie
aimeed
Posted

***UPDATE*** Took both ds's to the ped this morning. The youngest one she said looks like eczema (which I have been told it is all along), she is putting him on an antibotic because his one leg looks like it is getting infected. My oldest she doesn't know what it is, she is referring us to a dermatalogist, he has an appt next Thurs. She said she would test for celiac if he had more symptoms and that DH is so very rare she would be surprised if that was it. So I guess we will go to the dermotologist to see what he says.

My 2 boys (10 and 4) both have this rash that I can NOT get rid of for the life of me. I have tried every cream out there (steriod and non-steriod) but it just wont get rid of it. My oldest gets it on both his knees, elbows and bum. My youngest gets it on the back of his legs, the inside of his arm and his bum.

This is the back of my youngest leg:

Jacob-1.webp

This is my oldest elbow (looks the best it has looked in a long, long time):

TylerArm.webp

My oldest his ankle:

Tyler.webp

My oldest knee:

Tylerknee.webp

I have an appointment (yet again) tomorrow with their ped to try and figure this out, it has been going on for over a year. And both of the scratch and scratch themselves until the bleed. I am wondering if I should take them to a dermatologist instead. They both have asthma as well and when I had my oldest at the allergist about 6 months ago I asked him about it and he had no clue what it was, he said to try this cream to see if it helps. Any advice PLEASE!!!

Thanks!

Aimee

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CraigH Newbie
CraigH
Posted

The photos look very similar to my DH when I had outbreaks. I went to a dermatologist and it took 3 visits of trying different creams or ointments until he finally did a biopsy on one of the lesions. The biopsy indicated it was either Celiac Sprue, or DH, so he sent me to a high powered specialist at the University Hospital, who did 7 more biopsies, and confirmed it was DH. It is a bit unusual that several members of your family have the same symptons, since the specialist told me it isn't hereditary.

When I first broke out, I had the little blisters everywhere; in my hair scalp, my face and eyelids, elbows, knees, behind my knees, and butt cheeks. The itch was so bad, I couldn't sleep with it, so I was given some meds for the itch, which then knocked me out at night.

19 years later, my DH is in remission, but I have now been diagnosed by blood tests to have Celiac, so I am still on the gluten free diet.

My 2 boys (10 and 4) both have this rash that I can NOT get rid of for the life of me. I have tried every cream out there (steriod and non-steriod) but it just wont get rid of it. My oldest gets it on both his knees, elbows and bum. My youngest gets it on the back of his legs, the inside of his arm and his bum.

This is the back of my youngest leg:

Jacob-1.webp

This is my oldest elbow (looks the best it has looked in a long, long time):

TylerArm.webp

My oldest his ankle:

Tyler.webp

My oldest knee:

Tylerknee.webp

I have an appointment (yet again) tomorrow with their ped to try and figure this out, it has been going on for over a year. And both of the scratch and scratch themselves until the bleed. I am wondering if I should take them to a dermatologist instead. They both have asthma as well and when I had my oldest at the allergist about 6 months ago I asked him about it and he had no clue what it was, he said to try this cream to see if it helps. Any advice PLEASE!!!

Thanks!

Aimee

BananaLvr912 Newbie
BananaLvr912
Posted

I've been a celiac for year now. I just broke out a couple of weeks ago on my elbows (which is usually) but I also broke out on my knuckles and fingers (which is becoming more common the last few times). Your son's pictures look like a typically DH breakout. Does it itch? I know that my red spots are both painful and itchy. I know that if I do itch it ... it seems to last A LOT longer. I would recommend hydrocortisone and no itching. My skin is also very sensitive so I try not to use any hand soap, body wash, shampoo, detergent which have wheat products in it. I use Softsoap hand soap and body wash and Garnier Fructus shampoo and Purex Free for detergent. Hope this help! Best of luck at your appointment! :)

ravenwoodglass Mentor
ravenwoodglass
Posted

It does look like DH and it is presenting like DH, bilaterally for the most part. It doesn't surprise me at all that both kids would have as it is just as strongly genetic as celiac is. A diagnosis of DH is a diagnosis of celiac and no other testing needs to be done. Not everyone with DH has tummy issues but it is still considered a diagnosis of celiac disease.

Make sure the derm does the biopsy next to the lesions not on them.

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