Are Those With The Neurological Connection Even Extra Sensitive?

[Luvbeingamommy]

I was just wondering about this as I am MUCH better, but seem to have a good week and then 2 bad weeks...and so on.

I was reading somewhere else about this, with the stroke I obviously had the neurological problems. I did have some GI also, but that could be or may not be Celiac, GI said it didn't really matter. I also get nausea, which not sure if that's GI or neurological. Is this true or does it just depend?

I have been gluten free for a couple of months, but just a couple weeks ago bought new pans, colander, cooking utensils. Seemed to help initially, but then I accidently ate two pretzels= stupid me. So I am not sure what is making me worse now.

I did decide to try to eat only boxed items that I get at a Health Food Store that I know are made in a gluten free facility or else other fresh unboxed foods.

I was reading about shared toothpaste, dog food, etc....would that be something I need to think about?? My husband and one of my sons do eat gluten. I have not checked my prescription medication yet, but I plan to.

I just don't know how overboard to go, but I want to feel better. I am also not sure how to handle eating at other peoples houses, with their pans, etc. I guess even if they are willing to cook gluten free (which I appreciate), I will have to bring my own food. I kind of feel bad doing that though....

Any advice , thanks!

[coffeetime]

I was just wondering about this as I am MUCH better, but seem to have a good week and then 2 bad weeks...and so on.

I was reading somewhere else about this, with the stroke I obviously had the neurological problems. I did have some GI also, but that could be or may not be Celiac, GI said it didn't really matter. I also get nausea, which not sure if that's GI or neurological. Is this true or does it just depend?

I have been gluten free for a couple of months, but just a couple weeks ago bought new pans, colander, cooking utensils. Seemed to help initially, but then I accidently ate two pretzels= stupid me. So I am not sure what is making me worse now.

I did decide to try to eat only boxed items that I get at a Health Food Store that I know are made in a gluten free facility or else other fresh unboxed foods.

I was reading about shared toothpaste, dog food, etc....would that be something I need to think about?? My husband and one of my sons do eat gluten. I have not checked my prescription medication yet, but I plan to.

I just don't know how overboard to go, but I want to feel better. I am also not sure how to handle eating at other peoples houses, with their pans, etc. I guess even if they are willing to cook gluten free (which I appreciate), I will have to bring my own food. I kind of feel bad doing that though....

Any advice , thanks!

I have only neurological symptoms--migraines, dizziness, nausea (migraine aura) and I feel spacy with brain fog. I'm not super sensitive but if I am exposed I have a migraine within an hour. I do handle bread and other gluten products for my family, I just wash my hands immediately after handling, I do not use flour or non-gluten-free products that I might inhale. I did not buy any new pans, utensils, etc but prescriptions are important since you are ingesting them. I have tried to avoid eating at other people's homes as much as possible. Most people that have invited me however have been great. I think it makes them nervous, when they ask me what I "can" eat I always suggest salad and fruit and they seem relieved. I do love pot lucks though since I can bring a couple of dishes I know are safe.

[curiousgirl]

i was just diagnosed with celiac disease on wednesday may 26th and I have been a type 1 diabetic for 26 years.

a year ago, i began to notice my left hand becoming week and very slowly the muscles have become atrophied (actually looks like a skeleton hand now). this makes it difficult to do many things like button buttons, zip zippers, theres not enough strength in my index finger an thumb to do anything). over the past year, i've had countless MRI's, CT Myelograms, 6 EMG's, xrays, blah blah blah and my tests were even taken to a neurological/spine convention. after the convention, docs thought they found the problem, i had surgery last december and my hand is getting worse. after taking another mri and emg that gave no answers, my "case" was taken to another convention, my neurologist was to send me for a spinal puncture test (test spinal fluid), a special mri with my head in a bent-forward position (how are they going to do that??) and some blood tests for antibodies they'll send back to Mass. when i told him i was just diagnosed with celiac disease, he was intriges and is considering that this may be related to my hand...i had no idea and obviously need to begin reading about celiac (i feel better in denial tho).