Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Breaking Out Since Going Gluten Free


kimann79

Recommended Posts

kimann79 Apprentice

I have NEVER had problems with acne. Never. Not when a teenager, not when pregnant, nor during that time of the month.

I went gluten free about three weeks ago and all of a sudden, seemingly within the last few hours, I have developed the worst case of acne I've ever had. I woke up with one zit this morning and now my face, chest and neck are covered. It's awful. The only thing I have changed is going off gluten. Do you think this has something to do with that? Also, and I don't know if this is related to the the acne, my scalp hurts so bad. It feels like someone was trying to pull my hair out of my head. I can hardly touch it. That started the same time the acne flared up.

I keep looking in the mirror and am horrified. I've never even had to use anything stronger than organic cleanser on my face so this is kind of freaking me out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf-soph Apprentice

I have NEVER had problems with acne. Never. Not when a teenager, not when pregnant, nor during that time of the month.

I went gluten free about three weeks ago and all of a sudden, seemingly within the last few hours, I have developed the worst case of acne I've ever had. I woke up with one zit this morning and now my face, chest and neck are covered. It's awful. The only thing I have changed is going off gluten. Do you think this has something to do with that? Also, and I don't know if this is related to the the acne, my scalp hurts so bad. It feels like someone was trying to pull my hair out of my head. I can hardly touch it. That started the same time the acne flared up.

I keep looking in the mirror and am horrified. I've never even had to use anything stronger than organic cleanser on my face so this is kind of freaking me out.

I have had a somewhat similar problem - I had acne as a teenager, only on the face, and it was well controlled with the pill. Nothing changed when I went gluten free, but when I started a chemical elimination diet last year within a couple of days my scalp, neck and back all broke out in a horrible painful rash that I had never had before. It looked like lots of acne, but it hurt terribly to touch, and got itchy at times. It also didn't come to a head like a normal pimple, it just stayed the same for weeks at a time.

My dr put me on a very low dose antibiotic (a tetracyclic) and it cleared up. I know there are good reasons not to take antibiotics unnecessarily, but this was a subclinical dose so it didn't kill off bacteria. I went off the meds a while ago and the rash came back. I thought it was really nasty acne, but my dr looked at it and said it was actually folliculitis, an infection/inflammation of the follicles. If your rash doesn't look like normal acne, get a doctor or dermatologist to check it out.

You say you've only gone off gluten, but have you started eating something else to replace it, or have you started eating more of a certain food? You could be reacting to that. I imagine it could be some sort of body detox, but in my case it wasn't.

Some good news - I am redoing the elimination diet with some changes, and this time the reash doesn't show any signs of coming back despite me being off the medication for several weeks. Fingers crossed!

Hope you get it sorted soon, I know how upsetting it is.

kimann79 Apprentice

It is quite itchy. The ones on my face look like acne but there are a few (on my chest and back of my neck) that don't. I have added tapioca starch to my diet but I've had it before and didn't react like this. I've not really increased anything else in my diet. I've only taken away.

Unfortunately, I don't have insurance so I can't see a dermatologist. I hope it just goes away. I may try some tea tree oil. I don't know...

I'm starting the GAPS diet in October which is, I think, a kind of elimination diet. I hope I don't have to deal with something like what you went through!

ravenwoodglass Mentor

It is quite itchy. The ones on my face look like acne but there are a few (on my chest and back of my neck) that don't. I have added tapioca starch to my diet but I've had it before and didn't react like this. I've not really increased anything else in my diet. I've only taken away.

Unfortunately, I don't have insurance so I can't see a dermatologist. I hope it just goes away. I may try some tea tree oil. I don't know...

I'm starting the GAPS diet in October which is, I think, a kind of elimination diet. I hope I don't have to deal with something like what you went through!

The fact that it is itchy is significant. It may be DH, or the skin form of celiac. Make sure all your topicals are gluten free, including shampoos etc. Also make sure that all your eating is for sure gluten free, check all meds and supplements and avoid iodine.

If the rash consists of large mosquito type bumps then that would be an indication of an allergy rather than DH. If it is hives can get some relief from an antihistamine like benadryl.

Hopefully your outbreak will clear soon.

macocha Contributor

what about shingles? could it be that your body is stressed and this is the way it is reacting?

just putting it out there.

whatever it is - I hope it clears up! Acne shouldn't be that painful, should it?

kimann79 Apprentice

I don't think it's shingles. My sister had them and this is nothing like that. It's more itchy than painful. Only my scalp hurts but there is no outbreak there so I'm not sure what this is. I hope it's just some weird passing fluke.

bridgetm Enthusiast

I've been breaking out too. I always had clear skin and made it to age 20 with only a monthly zit, but within 2 months of going gluten-free I started breaking out. My face only, not itchy and completely different from the DH on my arms. It's weird and frustrating but it is managable so I guess I can't complain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.