Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Testing On Tummy Problems

skgirl

Recommended Posts

skgirl Newbie
skgirl
Posted

So here is my coles notes story....

I have had bad tummy problems since I can remember but they got really bad at the age of 16. I was a late bloomer almost 15 when puberty hit. Originally I chalked it up to food (mostly meat intollerance) My mother and Grandmother have the same problem. Two years ago I had been getting really bad/sharp stomach pains about 15 mins after eating and it didn't matter what it was. Went to the Dr.'s whom then sent me for blood tests and a colonoscopy (for crohns & colitis) which didn't go well felt every minute of it finally told the Dr. to stop because the pain was unberrable (and I have had 3 kids 1 all natural). When the results had gotten to my GP they said they were inconclusive... hmm i wonder why??? Anyways I had about enough of being poke and prodded at so I stop testing. My friends's new gluten-free (a nurse & celiac) suggested that I go and get tested for Celiac. I went to a new Dr. (i have moved) explained to her the time length and a brief on symptoms and she ordered at wack load of tests pretty much everything on the paper and then some.

Symptoms are:

stomach cramping, diarreah, loss of appitiet, lactose intolorant, I have been anemic for who knows how long, odd menstration (I also have PCOS and a messed up petuitary gland), monster headaches.

I have been paying more attention as of late to what i am eating since there seems to be no consistancy on what causes my stomach discomfort.

I hope that these test will find something or lead to something that may be bothering me so far though if it is something i would prefer celiac to crohns or colitis as it is WAY easier to treat!! Going for my blood tests tomorrow should find out soon....I hope

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skgirl Newbie
skgirl
Posted
  • Author

Dr's got my test results today I only had the tests on Wednesday....WOW I have to go see her next week YAY maybe some answers

ravenwoodglass Mentor
ravenwoodglass
Posted

Glad they got the results so quickly for you. Did they give the results to you? One thing you do want to keep in mind is that false negatives are not uncommon. When you are done with all testing do give the diet a good strict try no matter what the results.

skgirl Newbie
skgirl
Posted
  • Author

I am going to see the Dr. tomorrow morning. I am going to ask for the numbers of the test, I was planing to try the diet even if the numbers are a negative because as I have read on here so much that the test results can be negative, more often then not. I'll post the results tomorrow when I get them.

skgirl Newbie
skgirl
Posted
  • Author

So went to the Doctor the Celiac panel isn't back yet however she told me that in the mean time to go gluten free for at 3-6 months and see how that goes. She will call me when the panel comes back to let me know what it says but she told me the same thing that I have read here in so many posts the "False negatives are extremely common" I also was diagonased with hypoglycemia which if I don't watch it will turn into Diabetes within 5 years.... just one more thing to add to the list. My fathers side is riddled with it and the celiacs would come from my moms side (so I think mom & grandma have major tummy issues) However I talked to my dad and my cousin started with hypoglycemia then turned out he has celiacs....

Dixiebell Contributor
Dixiebell
Posted

I'm sure you have read on here if you plan on having an endoscopy you should continue to eat gluten and then after the endoscopy go gluten free.

ravenwoodglass Mentor
ravenwoodglass
Posted

So went to the Doctor the Celiac panel isn't back yet however she told me that in the mean time to go gluten free for at 3-6 months and see how that goes. She will call me when the panel comes back to let me know what it says but she told me the same thing that I have read here in so many posts the "False negatives are extremely common" I also was diagonased with hypoglycemia which if I don't watch it will turn into Diabetes within 5 years.... just one more thing to add to the list. My fathers side is riddled with it and the celiacs would come from my moms side (so I think mom & grandma have major tummy issues) However I talked to my dad and my cousin started with hypoglycemia then turned out he has celiacs....

It sounds like you have a good doctor. If you have celiac in your family then your chances of having it yourself a pretty good. I hope you have good results from the diet. Ask us any questions you feel you need to. Although it sounds like your doctor is going to be willing to diagnose you based on family history and response to the diet do call and check that she isn't going to want you to have a biopsy. If you go gluten free before the biopsy they won't be able to diagnose you without a gluten challenge.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skgirl Newbie
skgirl
Posted
  • Author

I don't beleive that she is going to bother with the biopsy...the family history is there and she told me to go ahead with the diet. I am overwhelmed by the hypoglycimia and the celiac but I have a really good book and you all to help me through this and an exremely understanding husband (most important).

Off to the post diagnosis section lol

skgirl Newbie
skgirl
Posted
  • Author

So the panel came back and she told me "two of the tree markers are there so in my opinion you have it, not going to bother with the biopsy but stay on the gluten free diet" so there I go I have been gluten free for just over a week now and feel fabulous already!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.