Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Terrible Stomach Pain

Rdv22222

By Rdv22222
in Coping with Celiac Disease

Recommended Posts

Rdv22222 Rookie
Rdv22222
Posted

Just wondering if anyone has had a sudden, severe bought of upper (middle) abdomen pain? Is this the bowel? Stomach? Other organ?

I also had bad back pain a little later, and together, they were unbearable and the ER doctor said I had GERD and back strain (lumbar). ( I had actually lifted some heavy things at work earlier in the day). Could the two be related? (back and abdominal pain?)

Also, I had been eating a lot of flax seeds, etc. prescribed by a nutritionalist? Also a lot of nuts. I discontinued both. This happened in April. Just worrying that it may be something related to celiac. I am currently being tested for celiac.

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Maus Newbie
Maus
Posted

Yes, I've had the pain you describe on numerous occasions and it is HORRIBLE! I always described it as being skewered through the stomach. If I had back pain, the stomach pain over-rode it, so I can't recall. I was also tested for celiac and learned I have the gene, but not the disease yet. As gluten-sensitive, my dr told me eating gluten-free could prevent the disease and could possibly make me feel better.

It's been 2 years now and I haven't had the intense pain since I've changed my lifestyle. I pray that you don't have any issues and that perhaps the situation is just muscular. Bear in mind, the muscles around the stomach and back are interconnected, and by exercising one, you exercise the other, too.

Best of luck.

Just wondering if anyone has had a sudden, severe bought of upper (middle) abdomen pain? Is this the bowel? Stomach? Other organ?

I also had bad back pain a little later, and together, they were unbearable and the ER doctor said I had GERD and back strain (lumbar). ( I had actually lifted some heavy things at work earlier in the day). Could the two be related? (back and abdominal pain?)

Also, I had been eating a lot of flax seeds, etc. prescribed by a nutritionalist? Also a lot of nuts. I discontinued both. This happened in April. Just worrying that it may be something related to celiac. I am currently being tested for celiac.

Thank you.

brendab Contributor
brendab
Posted

I've had that intense pain before but it doesn't happen often thank goodness! I don't understand it and it lasts for hours upon hours; I can feel every inch of my intestines until it reaches the end with little to no results. No explaination either as it was at a time I was KINDA gluten-free and so there were many times I ate gluten here and there without the pain. I wonder if it's the "bucket" theory of it running over? I don't know but I do know I feel your pain, literally!

brendab Contributor
brendab
Posted

I've had that intense pain before but it doesn't happen often thank goodness! I don't understand it and it lasts for hours upon hours; I can feel every inch of my intestines until it reaches the end with little to no results. No explaination either as it was at a time I was KINDA gluten-free and so there were many times I ate gluten here and there without the pain. I wonder if it's the "bucket" theory of it running over? I don't know but I do know I feel your pain, literally!

I'm sorry for quoting myself but I have always wondered about what I posted, is this particular pain a sometimes thing or is it everytime for everybody? Is it possible to have celiac disease when the pain is only sometimes as in just a few times a YEAR?

ravenwoodglass Mentor
ravenwoodglass
Posted

I'm sorry for quoting myself but I have always wondered about what I posted, is this particular pain a sometimes thing or is it everytime for everybody? Is it possible to have celiac disease when the pain is only sometimes as in just a few times a YEAR?

For me it was a sometimes pain prediagnosis. The first time I had it really bad my family rushed me to the ER thinking I was having a heart attack. I still get it if I get a lot of gluten or soy but that hasn't happened in a long time.

tweeks2010 Apprentice
tweeks2010
Posted

Just for info. Flax seeds can be manufactured/packaged in a facility with wheat products in it. Most of the flax seed packaged that you can by where i am say on the back..."Processed in a facility with wheat" or something rather. Also if you are buying these products in bulk (nuts/flax,ect), pay attention to what is in the other bulk bins beside them. It is very possible that whomever put them in the bulk bins didn't change gloves or tools(utensils) while doing it...so most of that could be and are mosre likely to be contaminated. This could very well be where you are getting the stomch cramps and pain from. I know it doesn't take much at all for me to react.

If you are unsure of the product being safe...call the company...they will tell you how it was processed....if it is processed around wheat/gluten containing items...they'll tell you if it is 100% gluten free or not. What I learnt so far...."better safe then sorry"

Tiffany

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,864
    • Most Online (within 30 mins)
      7,748
    Jojo3
    Newest Member
    Jojo3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.